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ResourcesState Mental Health Data Infrastructure Data GrantSixteen State Pilot Study State Mental Health Agency Performance MeasuresDraft Operational Measure Definitions February 27, 2001 Prepared by the National Association of State Mental Draft: please send corrections or additions to Ted Lutterman (NRI)– 703-739-9333 ext 21 (p), 703-548-9517 (f), or ted.lutterman@nasmhpd.org (e-mail). February 2, 2001 Draft Operational Definitions for the Performance Indicators tested by the Sixteen-State Indicator Pilot Study These are the data definition and table shells that the Sixteen States are currently using for the Sixteen-State Pilot Study on State Mental Health Agency Performance Measures. These definitions and table shells were developed cooperatively by the States, the National Association of State Mental Health Program Directors Research Institute (NRI) and CMHS over the past two and a half years. Please contact either Ted Lutterman at the NRI (phone:703-739-9333 ext 21 or e-mail: ted.lutterman@namshpd.org) or Olinda Gonzalez at CMHS (phone 301-443-2849 or e-mail at ogonzale@samhsa.gov) NASMHPD Framework of Mental Health Performance Indicators Domain: Access Initial Set: Developmental Set: Domain: Quality/Appropriateness Initial Set: Adults w/ SMI receiving effective services: Children receiving "Best Practice" Q10 Family Involvement in treatment for Children/Adolescents Developmental Set Domain: Outcome Initial Set: Adverse outcomes: O9 Health status: mortality Developmental Set Domain: Structure/Plan Management Initial Set Developmental Set Domain: Early Intervention/Prevention Initial Set Developmental Set INDICATOR: A1. PENETRATION/UTILIZATION RATESRATIONALE FOR USE: This indicator addresses the fundamental issue of whether persons with mental illnesses are receiving mental health services and whether the system is responsive to various consumer populations. In managed care settings, penetration rates have been reported for Medicaid managed care ranging from 1% to 7%. Benchmarks clearly need to be established for various subpopulations. In non-managed care settings, similar benchmarks are needed, but comparisons across states may be confounded by the different types of populations for which a state mental health authority is responsible. However, comparisons across subpopulations areas would be informative. APPROACH TO MEASURE: The basic construct of this measure is to reflect the proportion of persons in the population or sub-population that is receiving services. For an enrolled population, the denominator is easily defined. The denominator for a more general population is more problematic. In this situation, the general population is recommended. Penetration rates can be computed for various demographic breakouts, for various service categories and for different diagnostic groups. The workgroup has developed a general table from which different penetration rates can be computed. For the diagnostic and service categories, the denominators recommended are the state population. MEASURE(S): For break-outs by age (0-12, 13-17, 18-30, 31-45, 46-64, 65-74, 75+), ethnicity (white, African-American, Asian or Pacific Islander, Native American, Hispanic), gender, diagnosis (see attached table), adults with a serious mental illness or children with a serious emotional disturbance, and setting (inpatient and community services). See attached Tables 1 and 2 for recommended categories. Numerator: Unduplicated number of persons (in category) served during the year: Information is reported for State Fiscal Year 2000 for patients in: Denominator: State population in each of the standard Sixteen State reporting categories (age, sex, race/ethnicity). For diagnosis, the denominator is currently the total state population. CURRENT IMPLEMENTATIONS STATUS: Most of the 16 State Study states have reported data on utilization rates for state psychiatric hospitals and are currently reporting data for community mental health programs. If States are not able to report precisely in these categories, please report in the categories for which you have data. The raw data are available for individuals or states that wish to conduct more detailed analyses. SOURCES OF DATA: Administrative data, enrollment data. POPULATIONS: SETTINGS: Workgroup Chair: John Pandiani (Vermont) TABLE 1: Utilization by Component FY:_______
INDICATOR: A2 CONSUMER PERCEPTION OF GOOD ACCESSRATIONALE FOR USE: Timely and convenient access to services are major values of the public mental health system and are major factors in ensuring that persons receive needed services. APPROACH TO MEASURE: The important aspect is to obtain the consumer perspective through a confidential, self-report mechanism. A consumer survey is recommended. While penetration rates are a good systemic indicator of access, particular problems and barriers are difficult to identify. The approach inherent in this indicator is: " Ask the consumer." It is a customer-oriented indicator. MEASURE(S): The important aspect is to obtain the consumer perspective on aspects of the accessibility of services received through a confidential, self-report mechanism. A consumer survey is recommended. The expectation is that an annual, cross-sectional survey of consumers be conducted that includes an assessment of consumers' perception of their access to services. Given the widespread use of the MHSIP Consumer Survey by public mental health systems and consideration being given to its adoption by the private sector, it is recommended that this instrument be used. Measure: MHSIP Consumer Survey
CURRENT IMPLEMENTATION STATUS: Many of the states participating in the 16 State Study are implementing a version of the MHSIP Consumer Survey. SOURCES OF DATA: Consumer Survey: recommended measure: MHSIP Consumer Survey -- short or long versions. POPULATIONS: SETTINGS: Workgroup Chair: Judy Hall (Washington) QUALITY/APPROPRIATENESS INDICATOR: Q1 PERCENTAGE OF CONSUMERS THAT ACTIVELY PARTICIPATE IN DECISION MAKING REGARDING TREATMENT. (From MHSIP Consumer Survey)RATIONALE FOR USE: Participation by consumers (and family members for children) in decisions regarding treatment fosters a collaborative, trusting relationship and supports the consumer's (or family member's) ability to make decisions and act responsibly. Both for health and mental health services, research indicates that such involvement is correlated with positive outcomes. APPROACH TO MEASURE: The important aspect is to obtain information from the consumer regarding both active involvement in treatment decision-making and definition of treatment goals. This should be a consumer self-report measure and assess whether the desires of the consumer are considered in treatment planning. MEASURE(S): The workgroup recommends that this indicator be calculated using information collected directly from consumers and their families. From the MHSIP Report Card Consumer Survey, responses to the following items will be combined to create this measure:
CURRENT IMPLEMENTATION STATUS: Many of the states participating in the 16 State Study are implementing a version of the MHSIP Consumer Survey. SOURCES OF DATA: Consumer Survey: recommended measure: MHSIP Consumer Survey -- short or long versions. POPULATIONS: SETTINGS: ISSUES: The items in the MHSIP report card are indirect measures of involvement or participation in treatment planning. Some consumers (especially in state psychiatric hospitals) may choose to not participate in treatment planning. INDICATOR: Q2. PERCENTAGE OF CONSUMERS LINKED TO PHYSICAL HEALTH SERVICES. (Was consumers linked to "Primary health care")RATIONALE FOR USE: People with mental illness have relatively poor access to general healthcare. This often compounds their mental health problems and makes recovery difficult. Also, persons with serious mental illness are under served in medical care systems and have higher mortality rates due to medical causes. APPROACH TO MEASURE: The important aspect of this measure is whether the person with mental illness has had a face-to-face contact with a doctor or nurse primary care physician and not just whether the consumer has access to such a doctor or nurse physician . Ideally, the measure should address whether the consumer has had an annual physical exam but this was considered too problematic from a technical perspective. The measure could be obtained from administrative management information systems or from a consumer self-report. The 16 State Study Workgroup on this indicator is recommending several potential survey questions. Any states preparing a survey - please use the recommended (2) questions. Measure: The proportion of persons with emotional disturbances/mental illnesses surveyed during a year, who had a face-to-face contact with a doctor or nurse.
Note: Reporting states are currently asking one or more of the following questions –
Future recommended survey questions if we want to focus on non-emergency room contact per the preference stated in the President's Task Force Report (The Report also focuses on ‘primary care physician' – however no states are currently using this language, so the preference is to simplify with doctor/nurse):
Recommended Plan: Include the two above questions on the MHSIP Consumer Survey and the Child/Family Survey (with slight wording modification for the family survey). CURRENT IMPLEMENTATION STATUS: ?? SOURCES OF DATA: Consumer response to questions added to MHSIP Survey or Analysis of Medicaid claims data for Medicaid eligible consumers. POPULATIONS: SETTINGS: Workgroup Chair: Deb Kupfer, Colorado Mental Health Services INDICATORS: Q3 CONSUMERS ARE CONTACTED BY COMMUNITY PROVIDERS WITHIN 7 DAYS OF STATE HOSPITAL DISCHARGERATIONALE FOR USE: Continuity of care is critical to avoid recurrence of symptoms and to move the process of recovery forward. APPROACH TO MEASURE: The important aspect of this measure is to monitor continuity of care in the period following a hospital discharge. Some systems may not be able to obtain follow-up information from all community providers. If this is the case, the measure should focus on follow-up among a pre-defined subset of providers. MEASURE: Contacts should be a face-to-face contact occurring in a consumer's family's home, school, place of employment, or clinic between a consumer and a psychiatrist, other mental health professional, or case manager; no forensic/drug/alcohol or domestic violence contacts should be included. Discharge is an event, (that is to say, count all discharges; do not count a patient with multiple discharges as one discharge). Outpatient Service is a contact to the CMHC's only. Inpatient Hospitalization is for a state psychiatric hospital in which only planned discharges are included; no leave releases, AWOLs or transfers should be included. If someone is "discharged from pass," then the date of the "discharge" should then be the first date of the pass." The data for the 0-7 days time period is the minimum dataset to report; data for additional time periods may be reported and will be compiled for comparison. for the "29-_____ " time period, please indicate the extent of your state's collection by filling in the blank (i.e., 29-60 days or 29-730 days).
Definitions:
Comments: The indicator references services provided to an individual who has been discharged from a long-term or short-term care state psychiatric hospital. Information on discharges from psychiatric units of general hospitals or non-state or county-operated psychiatric hospitals may not be available in all states and are therefore not included in this data collection. CURRENT IMPLEMENTATION STATUS: POPULATIONS: SETTINGS: SOURCE OF DATA: Management information systems or aggregate reports Workgroup Leader: Tracy Leaper, Oklahoma INDICATORS: Q4 CONSUMER PERCEPTION OF THE QUALITY/APPROPRIATENESS OF SERVICESRATIONALE FOR USE: Research suggests that a positive therapeutic relationship results in positive outcomes. The sensitivity to and respect for the consumer, the collaborative connection between the consumer and the therapist, and the consumer's perception of the competence of staff and the quality of care are factors which will determine the consumer's willingness to remain in treatment. APPROACH TO MEASURE: The important aspect is to obtain the consumer perspective on the quality and appropriateness of the services received through a confidential, self-report mechanism. A consumer survey is recommended. The approach inherent in this indicator is: "Ask the consumer." It is a customer-oriented indicator. MEASURE: The important aspect is to obtain the consumer perspective on the impact of the services received through a confidential, self-report mechanism. A consumer survey is recommended. Given the widespread use of the MHSIP Consumer Survey by public mental health systems and consideration being given to its adoption by the private sector, it is recommended that this instrument be used. If the MHSIP Consumer Survey is used, perception of the quality of services will be measured by responses to the following items:
Scoring: Numerator: Total number of respondents with an average scale score < 2.5. CURRENT IMPLEMENTATION STATUS: Many of the states participating in the 16 State Study are implementing the a version of the MHSIP Consumer Survey. SOURCES OF DATA: Consumer Survey: recommended measure: MHSIP Consumer Survey -- short or long versions. POPULATIONS: SETTINGS: INDICATOR: Q5: PERCENTAGE OF ADULTS WITH A SERIOUS MENTAL ILLNESS RECEIVING ASSERTIVE COMMUNITY TREATMENT SERVICESRATIONALE FOR USE: This an example of an innovative program model designed to meet the needs of persons who are seriously mentally ill. States are expected generally to plan for the development of such innovative programs as alternatives to inpatient services when warranted. The workgroup recognizes that not all states offer assertive community treatment programs, and that not all persons with serious mental illness necessarily need such services, however research has demonstrated the effectiveness of these services for many consumers. APPROACH TO MEASURE: This measure - with the other exemplary services - is intended to reflect quality and appropriateness by monitoring the extent of the implementation of these services. Monitoring this measure in conjunction with inpatient penetration rates or for persons with a history of inpatient services could also prove useful. The 16 State Study workgroup has developed a brief survey that is being used to assess the extent to which a program meets criteria to be included as an "Assertive Community Treatment" (ACT) program. MEASURE(S): Although many states have services they describe as "assertive community treatment", these services may be conceptualized and operationalized differently. A recommended survey to help operationalize ACT is included below. Numerator: The number of consumers with severe mental illness receiving assertive community treatment. POPULATIONS: SETTINGS: ISSUES: Highlighting these services in the performance measurement system will not only help establish benchmarks but will also promote these services. Workgroup Chair: John McGrew (Indiana)
Identify putative ACT sites and the clinical director of the identified ACT team.
ACT Brief Definitions Ultimate clinical responsibility -
Close involvement with client's treatment when hospitalizations required -
RATIONALE FOR USE: Evidence-based services that promote long-term recovery should be important component of any system that serves people with serious mental illness. The workgroup recognizes that not all states offer Supported Employment programs, and that not all persons with serious mental illness necessarily need such services, however research has demonstrated the effectiveness of these services for many consumers. APPROACH TO MEASURE: This measure - with the other exemplary services - is intended to reflect quality and appropriateness by monitoring the extent of the implementation of these services. MEASURE(S): Although many states have services they describe as "supported employment", these services may be conceptualized and operationalized differently. A recommended survey to help operationalize SE is included below. MEASURE: Numerator: The number of consumers with severe mental illness receiving supported employment services. CURRENT IMPLEMENTATION STATUS: SOURCE OF DATA: Management Information Systems, Medicaid data POPULATIONS: SETTINGS: ISSUES:
Full time equivalent - one FTE unit refers to 40 hours per week or more of full-time responsibilities dedicated to the SE team. However, the definition of full-time may vary by state, such that 35 hours may be considered full-time in some locales. An FTE may be satisfied by one person working full-time or two or more part time employees whose hours sum to at least 40 hours (may replace 40 hours with the local standard for full-time work). Distinct vocational unit - Works as a team, team meets regularly, provide services for each others' cases, job leads, backup and support Shared caseloads - indicates that all team members are involved in the planning of services for all clients. RATIONALE FOR USE: Evidence-based services that promote long-term recovery should be important component of any system that serves people with serious mental illness. The workgroup recognizes that not all states offer Supported Housing programs, and that not all persons with serious mental illness necessarily need such services, however research has demonstrated the effectiveness of these services for many consumers. APPROACH TO MEASURE: This measure - with the other exemplary services - is intended to reflect quality and appropriateness by monitoring the extent of the implementation of these services. MEASURE(S): Although many states have services they describe as "supported housing", these services may be conceptualized and operationalized differently. Recommended Definition: Supported Housing helps people with special needs to successfully select, obtain, and maintain safe, decent, affordable housing that is linked to individualized and flexible services provided within the community. MEASURE: Numerator: The number of consumers with severe mental illness receiving supported housing services. Recommended Coding Categories:
Proposed Frequency of Reporting Living Situation:
CURRENT IMPLEMENTATION STATUS: SOURCE OF DATA: Management Information Systems, Medicaid data POPULATIONS: SETTINGS: Workgroup Chair: Nancy Callahan RATIONALE FOR USE: Consumers should be receiving treatments that are consistent with the definition of "best practices." New generation (atypical) antipsychotic are considered to be preferable to older agents in the treatment of psychosis. Therefore, use of these agents may be an indication of the degree to which clients are receiving treatments that conform to best practices. MEASURES TO BE COLLECTED:
Reporting Guidelines:
The timeframe for collection is fiscal year. Traditional: Atypical: Clients who received new generation or traditional antipsychotics only "as needed," "p.r.n.," "now," or "stat" medications should not be recorded. Only clients who receive these medications as a result of "standing" or "scheduled" orders (e.g., BID, TID, QD) should be counted. In order to more accurately capture the percentage of clients taking atypical medications (and to more closely correspond to NRI's ORYX measure), the numerator and denominator (where applicable) of each measure state medications received. However, data from states that only can report information on prescribed medications is acceptable, but should be labeled accordingly. Counts should be unduplicated within and between all hospital settings. Counts should also be unduplicated within and across all community providers. However, counts should be duplicated across hospital and community settings for patients/clients served in both settings. For clients who are admitted/discharged multiple times throughout the reporting period, and whose diagnosis (es) change(s) across admissions, the diagnosis (es) from the client's most recent discharge or current as of the end of the fiscal year should be reported. For example, for the FY 99 reporting period (July 98 _ June 99), if a client was discharged in October '98 and April '99, the diagnosis(es) as of April '99 would be reported. If a client was discharged in October '98, readmitted in April '99, and was still hospitalized at the end of the fiscal year, the diagnosis(es) as of the end of the fiscal year would be reported. **Note: The Antipsychotic Medication and Dosing criteria have been adopted from the NRI Behavioral Healthcare Performance Measurement System. BREAKOUTS FOR REPORTING:
The NASMHPD framework suggests that this indicator be collected separately for hospital and community settings. Hospital: (counts reported separately for the following types) Community: Any community provider that is operated or funded (in full or in part) by the state mental health authority. Gender Calculating the Counts: Please use the following examples (which are applicable to both community and hospital settings) as a guideline when calculating the counts for these measures.Example 1: Measure 1/Stage I: Measure 1/Stage II: Measure 2: Example 2: Measure 1/Stage I: Measure 1/Stage II: Measure 2: Example 3: Measure 1/Stage I: Measure 1/Stage II: Measure 2: Example 4: Measure 1/Stage I Measure 1/Stage II: Measure 2: *Note: Upon collection of the data template from each state, the workgroup will calculate Measure 3 by dividing the counts provided for the numerator of Measure 2 (persons receiving atypical antipsychotic) by the appropriate state population for that category (e.g., penetration rate of atypical medication use for White persons = [Number of whites in the numerator of measure 2 /Number of White persons in the state census] * 100,000). IMPLEMENTATION STATUS: Workgroup: Jocelyn Letourneau (RI), Nancy Covell INDICATOR Q9A PERCENT LIVING IN A FAMILY-LIKE SETTING FOR CHILDREN AND ADOLESCENTS WITH A SERIOUS EMOTIONAL DISTURBANCE RATIONALE FOR USE: Services for children and adolescents are best provided in the home or in home-like settings. To the extent possible, placing children and adolescents in 24-hour settings such as hospitals should be avoided. MEASURE Definition: Percent of children and adolescents with SED served by the mental health authority who are living in a family-like setting while receiving services.
Related Definitions:
SOURCE OF DATA: MIS, Family and /or Self-report CURRENT IMPLEMENTATION STATUS: Virginia has completed a survey of the 16 State study states regarding their ability to report this indicator. Seven (7) States report they can report this indicator if it is defined as "currently living in a family-like setting". POPULATIONS: SETTINGS: ISSUES: Many States report that they can only report the current living situation of children and adolescents, not where they lived the "entire" reporting period or "most" of the reporting period. WORKGROUP LEADER: Molly Brunk, Virginia INDICATOR: Q9B: PERCENTAGE OF CHILDREN AND ADOLESCENTS WITH SERIOUS EMOTIONAL DISTURBANCES IN 24-HOUR SETTINGS WHO ARE IN THERAPEUTIC FOSTER CARE SETTINGS RATIONALE FOR USE: Therapeutic Foster Care is considered the least restrictive form of out-of-home placement for children with severe emotional disorders. The Surgeon General's Report on Mental Health highlighted therapeutic foster care as an efficacious service. (see p.176) "Care is provided in private homes with specially trained foster parents. The combination of family-based care with specialized treatment interventions creates a 'therapeutic environment in the context of a nurturant family home. RECOMMENDED MEASURE:
CURRENT IMPLEMENTATION STATUS: Virginia has completed a survey of the 16 State study states regarding their ability to report this indicator. Five (5) States report they can report this indicator. SOURCE OF DATA: MIS POPULATIONS: SETTINGS: ISSUES: Defining what residential settings are counted as therapeutic foster care programs is the key issue. The Surgeon General's report offers the following guidance: "Children are placed with foster parents who are trained to work with children with special needs. Usually, each foster home takes one child at a time, and caseloads of supervisors in agencies overseeing the program remain small. In addition, therapeutic foster parents are given a higher stipend than to traditional foster parents, and they receive extensive pre-service training and in-service supervision and support. Frequent contact between case managers or care coordinators and the treatment family is expected, and additional resources and traditional mental health services may be provided as needed." (p.176) WORKGROUP LEADER: Molly Brunk, Virginia INDICATOR: Q9C : PERCENTAGE OF CHILDREN AND ADOLESCENTS WITH SERIOUS EMOTIONAL DISTURBANCES WHO RECEIVE SERVICES IN "NATURAL SETTINGS (HOME OR IN-SCHOOL SETTINGS) RATIONALE FOR USE: The Children's Workgroup felt that the provision of services to children and adolescents in natural settings (i.e., "out-of-the-office") is an important measure of a responsive community mental health system. RECOMMENDED MEASURE: Numerator: Total number of contacts by the mental health agency to children and adolescents with SED that occurred in natural settings during the reporting period. Denominator: Total number of contacts by the mental health agency to children and adolescents with SED during the reporting period. CURRENT IMPLEMENTATION STATUS: Virginia has completed a survey of the 16 State study states regarding their ability to report this indicator. Three (3) States report they can report this indicator. SOURCE OF DATA: MIS POPULATIONS: SETTINGS: ISSUES: It is unknown if State MIS systems can identify "in-home" and "in-school" services. WORKGROUP LEADER: Molly Brunk, Virginia INDICATOR Q10: PERCENTAGE OF PARENTS OF CONSUMERS WHO PERCEIVE THAT THEY PARTICIPATED IN CHILD'S TREATMENT RATIONALE FOR USE: Parents perceptions of their involvement in the treatment process will affect their willingness to allow their child to remain in treatment. Research indicates that involvement in decisions regarding treatment is correlated with positive outcomes. APPROACH TO MEASURE: This measure applies to family participation in treatment planning and treatment delivery for children. The important aspect is to obtain information from the family regarding both active involvement in treatment decision-making and definition of treatment goals. This should be a family self-report measure and should reflect that the desires of the family are considered in treatment planning. Alternatively, this indicator could be measured by an MIS system that has objective measures of family participation in treatment provision. MEASURE: The important aspect is to obtain parents' perspectives on their involvement in their children's treatment through a confidential, self-report mechanism. A parent survey is recommended. The expectation is that an annual, cross-sectional survey of parents of child mental health consumers be conducted that includes an assessment of parents' perceptions of their participation in their children's treatment. The 16 State Study workgroup is currently piloting the Youth Services Survey (YSS) and the Youth Services Survey for Families YSS-F. The YSS-F includes items that can be used to assess information parent's perceptions of their involvement in treatment planning for their children. The current pilot will identify specific items that will be used to generate a score for the numerator for this indicator.
BURDEN: SOURCE OF DATA: CURRENT IMPLEMENTATION STATUS: Currently being piloted in ___ states. POPULATIONS: SETTINGS: ISSUES: WORKGROUP LEADER: Molly Brunk, Virginia INDICATOR: Q11. PERCENTAGE CONSUMERS DISCHARGED THAT ARE PSYCHIATRICALLY RE-HOSPITALIZED WITHIN 30 DAYS AND 180 DAYS OF DISCHARGE. RATIONALE FOR USE: Given the increasing limited use of psychiatric inpatient care, hospitalization most likely indicates an acute episode of illness. An important goal of mental health treatment is to minimize such episodes. This indicator reflects the performance of the system (inpatient and outpatient) rather than the performance of only the hospital. APPROACH TO MEASURE: The important aspect of this measure is the rehospitalization of the consumer. Ideally, the system should monitor any rehospitalization, not just rehospitalization to the particular hospital from which the consumer was discharged MEASURE(S): The total number of admissions to state psychiatric hospital inpatient care that occurred within 30 and 180 days of a discharge from a psychiatric inpatient care during the past year divided by the total number of discharges during the year.
CURRENT IMPLEMENTATION STATUS: SOURCE OF DATA: Existing MIS. POPULATIONS: SETTINGS: ISSUES: When reporting by diagnostic categories: when there are different diagnoses between the first admission and the readmission, use the discharge diagnosis from the first admission. Ideally, this indicator would be expanded to include all readmissions to any hospital, not just state psychiatric hospitals. With the increased use of local general hospital psychiatric units, it will be come important over time to expand this indicator beyond the current focus on state psychiatric hospitals. WORKGROUP LEADER: Sudha Mehta, New York INDICATOR: Q12: USE OF SECLUSION IN PSYCHIATRIC INPATIENT UNITS RATIONALE FOR USE: Mental health service providers that are consumer-focused value an individual's autonomy and independence. Therefore, these providers seek to maximize the use of service modalities that are minimally, if at all, restrictive. While restrictive treatments are sometimes necessary, utilization of such treatments must be minimized and closely monitored. Overutilization of highly restrictive treatments may represent the unavailability of more appropriate, less restrictive therapies or the presence of treatment providers who lack respect for client autonomy and dignity. APPROACH TO MEASURE: While the amount of hours in seclusion is one indicator, data suggest that a small number of consumers experiencing seclusion account for a disproportionate share of the total time. The second measure obtains the actual number of persons experiencing seclusion. MEASURE 1: Hours of seclusion as a percent of client hours
Measure 2 Definition: Percent of clients secluded at least once during a reporting period
Related Definitions: Begin and End Times - an "episode" of restraint or seclusion is an event that begins when an individual goes into seclusion or restraint ("Event Begin Time") and ends when the individual is released ("Event End Time"). It is possible for one event to be associated with multiple orders. For example, if an order for restraint is renewed and the client never exits the restraints between the original order and the renewal, only one event has occurred. Also, cases may exist in which a client has multiple seclusion or restraint events associated with a single order. For example, this would occur if an individual is removed from seclusion within the time limits of the initial seclusion order and staff are allowed to reapply seclusion without obtaining a new order. If a client is removed from seclusion or restraint only briefly for the purpose of toileting or to evaluate the need for continuation of the intervention and is then quickly returned to seclusion or restraint, the initial event should be considered to have continued. In such a case, only one event has occurred. SOURCE/S OF INFORMATION: MIS, Hospital Incident Monitoring System CURRENT IMPLEMENTATION STATUS: POPULATIONS: SETTINGS: ISSUES: INDICATOR: Q13: USE OF RESTRAINTS IN PSYCHIATRIC INPATIENT UNITS RATIONALE FOR USE: Mental health service providers that are consumer-focused value an individual's autonomy and independence. Therefore, these providers seek to maximize the use of service modalities that are minimally, if at all, restrictive. While restrictive treatments are sometimes necessary, utilization of such treatments must be minimized and closely monitored. Over-utilization of highly restrictive treatments may represent the unavailability of more appropriate, less restrictive therapies or the presence of treatment providers who lack respect for client autonomy and dignity. APPROACH TO MEASURE: While the amount of hours in restraint is one indicator, data suggest that a small number of consumers experiencing restraint account for a disproportionate share of the total time. The second measure obtains the actual number of persons experiencing restraint. MEASURE 1 DEFINITION: Hours of restraint as a percent of client hours
MEASURE 2 DEFINITION: Percent of clients restrained at least once during the reporting period
Related Definitions: Restraint: any involuntary method of physically restricting a client's freedom of movement, physical activity, or normal access to his or her body (from JCAHO standards). Restraints used for security purposes during transport of a client out of the building or off the premises to receive therapeutic services or to participate in activities directly related to the client's illness (such as court proceedings or appointments necessary to acquire human services) are not to be reported. Also, restraint devices employed for medical purposes (Geri-chair, posey, etc..) or as personal protective devices (helmets, bed rails, etc..) should not be reported. Begin and End Times - an "episode" of restraint or seclusion is an event that begins when an individual goes into seclusion or restraint ("Event Begin Time") and ends when the individual is released ("Event End Time"). It is possible for one event to be associated with multiple orders. For example, if an order for restraint is renewed and the client never exits the restraints between the original order and the renewal, only one event has occurred. Also, cases may exist in which a client has multiple seclusion or restraint events associated with a single order. For example, this would occur if an individual is removed from seclusion within the time limits of the initial seclusion order and staff are allowed to reapply seclusion without obtaining a new order. If a client is removed from seclusion or restraint only briefly for the purpose of toileting or to evaluate the need for continuation of the intervention and is then quickly returned to seclusion or restraint, the initial event should be considered to have continued. In such a case, only one event has occurred. SOURCE/S OF INFORMATION: MIS, Hospital Incident Monitoring System CURRENT IMPLEMENTATION STATUS: POPULATIONS: SETTINGS: ISSUES: INDICATOR: Q14 MEDICATION ERRORS RATIONALE FOR USE: A critical component of the treatment of mentally ill clients, particularly those clients with severe and persistent illness is pharmacotherapy. If appropriately prescribed, distributed, administered and monitored, pharmacotherapy can produce significant improvement in symptoms. However, if inappropriately prescribed, distributed, administered or monitored, medications can be associated with significant harm or death to the client. Given the relatively high incidence of medication use among psychiatric clients and the high potential for adverse outcomes of medication-related errors, tracking of such errors and subsequent identification of causal factors is an essential component of the performance improvement process in organizations providing psychiatric health care. MEASURE: Ratio of the number of medication errors reported to the duplicated count of clients served during the reporting period
Related Definitions: Medication Error - A medication error occurs when a client receives an incorrect drug, drug dose, dosage form, quantity, route, concentration, or rate of administration. To be defined as an error, some form of variance in the desired treatment or outcome must have resulted. Therefore, both the failure to administer a drug ("missed dose") or the administration of a drug on a schedule other than intended constitute medication errors. Medication Error Types - The three key types of medication errors are:
Medication Error Severity: While medication errors are not uncommon, most result in few if any significant, enduring consequences. However, the frequency with which errors are reported varies widely across health care organizations with some reporting all errors despite frequency and others only reporting those considered serious. The measurement system considers it important to encourage reporting of all incidents so that quality improvement efforts may be initiated to identify the factors contributing to even "minor" errors. Heightened awareness of and vigilance in preventing such minor errors will contribute to the prevention of more serious errors. This concept is consistent with the foundational principles of quality management. The following severity ratings are proposed for use in reporting data to NRI. These following definitions represent a distillation of several states' current practices. SOURCE/S OF INFORMATION: CURRENT IMPLEMENTATION STATUS: SOURCE OF DATA: POPULATIONS: SETTINGS: ISSUES: INDICATOR: O1.CONSUMER PERCEPTION OF POSITIVE CHANGE AS A RESULT OF SERVICES. RATIONALE FOR USE: This indicator is the most direct measure of the consumer's perception of the effectiveness of services. APPROACH TO MEASURE: The important aspect is to obtain the consumer perspective on the impact of the services received through a confidential, self-report mechanism. A consumer survey is recommended. The approach inherent in this indicator is: "Ask the consumer." It is a customer-oriented ind icator.MEASURE(S): The important aspect is to obtain the consumer perspective on the impact of the services received through a confidential, self-report mechanism. A consumer survey is recommended. The expectation is that an annual, cross-sectional survey of consumers be conducted that includes an assessment of consumers' perception of the outcome of services. Given the widespread use of the MHSIP Consumer Survey by public mental health systems and consideration being given to its adoption by the private sector, it is recommended that this instrument be used. If the MHSIP Consumer Survey is used, perception of the outcomes of services will be measured by responses to the following items:
Scoring: CURRENT IMPLEMENTATION STATUS: Many of the states participating in the 16 State Study are implementing the a version of the MHSIP Consumer Survey POPULATIONS: SETTINGS: SOURCES OF DATA: MHSIP Consumer Survey -- short or long versions. ISSUES: INDICATOR: O2 PERCENTAGE OF AVAILABLE SCHOOL DAYS ATTENDED. RATIONALE FOR USE: From a societal perspective, this is a major indicator of improvement in functioning produced by treatment. The technical workgroup recognized that school attendance or school performance are not determined solely by the mental health services received and that mental health service providers can not be held responsible for school performance. However, this is a critical objective for such services and mental health services should have some impact. This was considered an important outcome to track. APPROACH TO MEASURE: Various measures of school performance can be used: school attendance, school performance, behavior problems. As an outcome measure, a longitudinal approach monitoring change for an individual is recommended but cross-sectional approaches can be used. Measures of school attendance - while not necessarily ideal - were considered less burdensome. The Children's Workgroup of the 16 State Study has surveyed participating states regarding several potential measures related to the impact of mental health services on school.
CURRENT IMPLEMENTATION STATUS: The Children's Workgroup has found that although states reported these indicators to be of very high utility, that very few states can currently report necessary data for these indicators. SOURCES OF DATA:
POPULATIONS: SETTINGS: ISSUES:
INDICATOR: O3 CHANGE IN EMPLOYMENT AFTER SERVICES RATIONALE FOR USE: For payers, this is the payoff. The ultimate "so what?" Productive activity is an important component of role functioning for adults. Clearly, this is a distal outcome which is determined by several factors, some of which are outside the control of the mental health system. Monitoring this indicator for populations with mental illness, however, is critical. As in the case of school performance for children and adolescents, mental health service providers can not be held responsible for employment. However, this is a critical objective and mental health services should have some impact. This was considered a critical outcome to track. APPROACH TO MEASURE: The important aspect of this measure is to monitor change in employment status over time. As an outcome measure, a longitudinal approach monitoring change for an individual is recommended but cross-sectional approaches can also be used. The 16 State Study workgroup is currently surveying study participants to assess their ability to report employment data in several potential formats. A copy of the survey is attached. MEASURE(S): 1(a). For persons age 18-64 receiving services more than six months. 1(b). Same as 1(a) but for persons in system 12 months or more. CURRENT IMPLEMENTATION STATUS: SOURCE OF DATA: MIS Consumer/report POPULATIONS: SETTINGS: ISSUES: See attached survey currently being completed regarding state ability to track employment status: Note: Please send hard copies of documents and forms that you use to collect employment data to: Denny Geertsen, Ph.D., 120 N. 200 West #415, Salt Lake City, UT 84103, or email dgeertse@hs.state.ut.us or fax (801) 538_9879
INDICATOR: O4 PERCENTAGE OF CONSUMERS WITH MAINTAINED OR IMPROVED LEVELS OF FUNCTIONING RATIONALE FOR USE: Mental health services are expected to improve a person's ability to respond to problems, crises, and everyday situations they encounter. The important aspect is to monitor change in functioning for an individual across time. Depending on the particular situation of the consumer, success could be denoted by either improvement in functioning or in maintenance of functioning level. Different standardized instruments exist for the measurement of functioning. APPROACH TO MEASURE: The important aspect is to monitor change in functioning for an individual across time. Depending on the particular situation of the consumer, success could be denoted by either improvement in functioning or in maintenance of functioning level. Different standardized instruments exist for the measurement of functioning. RECOMMENDED MEASURE:
INSTRUMENTS RECOMMENDED: The workgroup has reviewed a number of instruments currently being used by the States. The workgroup has requested states submit de-identified client level information for these instruments that will be analyzed by the workgroup to explore issues in calculating these measures and in comparing results across different instruments.
CURRENT IMPLEMENTATION STATUS: POPULATIONS: SETTINGS: ISSUES: An important consideration is that various measures are currently being implemented by the states. To compare across these measures, it may be important to develop calibration studies to compare these measures. For elderly persons, maintaining functioning may be the goal, not improving. On the next page, guidelines for the submission of data from the 16 State study states are described. The Reliable Change Index, (RCI) described in the literature by Jacobson and Traux, is a statistical method to calculate how much change has occurred at post test in cases where using a cutoff point is not statistically reliable. The formula for the RCI is: ![]() Where X1 represents the pretest score, X2 represents the same consumer's post test score, and Sdiff is the standard error of the difference between the two test scores. Sdiff can be computed directly from the standard error of measurement (SE); Sdiff = the square root of 2(SE) . An RCI of 1.96 or greater is significant (p < .05) and would be unlikely to occur without actual change. In other words, using the RCI adjusts for the S.D. in the pretreatment group and the test-retest reliability of the measure. But, using the RCI alone does not allow one to differentiate change based upon the value of the pre-test score. That is, it does not differentiate the significance of a similar point change in persons starting out at different levels on a scale (a one point change from 5 to 6 versus 34 to 35). Using the log of the pre and post-test scores and the log of Sdiff allows for this differentiation. This is useful in determining the amount of change that is needed to reach significance for people starting out at high as opposed to low scores and for ascertaining cutoffs where change is not possible, based upon the raw score change needed to achieve a significant RCI (ceiling effect). Workgroup: Mary Smith, Illinois - Chair Goals: Obtain Item Level Data Sets from States for the following instruments:
Program Type: Goal: Community Setting Sample: Unduplicated individuals who during a two-year window (for example: FY9798-FY9899 or FY9899-FY9900) had at least two evaluations: An Admission Evaluation, and at least one additional evaluation (Review or Discharge) If more than one episode, unduplicate by choosing the first episode. Sample Size: Goal: 5000 to 10000 unduplicated individuals per instrument Mult. Instruments: We are very interested in obtaining any samples that you may have of consumers with simultaneous (same evaluation points, e.g. admission, 6-month review, discharge) evaluations on more than one instrument. (for example: CAFAS, CBCL and CGAS). If you have any samples with multiple instruments (at least 500 unduplicated individuals), please note and include. Reliability: For each instrument, if available, send inter-rater or test-retest reliability estimates. Data Type: Data sent as: SPSS 7-10 .SAV File (System File for pc version of SPSS)
Data Records:
Functioning and Symptoms Instruments: Mary Smith (IL) leader, with Randy Koch (VA), Jack Wackwitz (CO), Ted Lutterman (NRI), and Vijay Ganju (TX) INDICATOR: O5 PERCENTAGE OF CONSUMERS EXPERIENCING SYMPTOM RELIEF. RATIONALE FOR USE: A major function of mental health treatment is to provide relief from the symptoms associated with mental illness including suicidality, psychotic symptoms and depressive symptoms. APPROACH TO MEASURE: The important aspect is to monitor change in functioning for an individual across time. Depending on the particular situation of the consumer, success could be denoted by either reduction in symptoms or in maintenance of symptoms level. Different standardized instruments exist for the measurement of functioning. See discussion of "Indicator O4- Client Functioning" for a further discussion of measuring change. RECOMMENDED MEASURE:
CURRENT IMPLEMENTATION STATUS: SOURCE OF DATA: Clinician Report; Self Report POPULATIONS: SETTINGS: ISSUES: The Client Assessment Instrument Workgroup is currently requesting 16 State Study states submit data in a standardized format to test the construction of these measures. See rules for submission of data in Indicator O4, Client Functioning above. INDICATOR: O6 ADVERSE OUTCOMES: CONSUMER INJURIES Rationale: If inpatient mental health services are to be maximally effective, clients must feel that they are in a safe environment that is free of unusual physical risks. The rate of physical injury reflects not only the safety of the physical structures of the facility but may also reflect the effectiveness or appropriateness of care. Ineffective care may result in abnormally high instances of harm to clients by self (self-injurious behavior) or others (acts of physical violence). Inappropriate care may be reflected in high rates of injury caused by neglect (e.g. falls) or injuries inflicted by abusive staff. Measure: Number of client injuries per client day
Related Definitions:
The following are valid categories for describing the severity of reportable injuries:
If the cause of the injury is known, the cause may be accidental, self-inflicted or the result of an assault. SOURCE OF DATA: MIS POPULATIONS: SETTINGS: ISSUES: INDICATOR: O7 ADVERSE OUTCOMES: ELOPEMENT RATIONALE FOR USE: Psychiatric hospitals, particularly institutions serving severely and persistently ill clients, have a unique responsibility for insuring both client and public safety. Often, the effects of brain disorders that produce mental illness render an individual's thinking unclear and, at times, irrational. Actions based on such distorted thinking can result in harm to self or others. Harm secondary to distorted thinking can be minor (the development of a minor illness due to insufficient clothing during cold weather) or serious (traffic accident injuring several people). When such consequences are likely, it is desirable for clients to be closely cared for in a safe environment. High rates of elopement from inpatient psychiatric facilities may represent insufficient efforts to insure client and public safety. Alternatively, such high rates may indicate a less than desirable treatment environment from which clients are likely to leave. In either case, opportunities for improvement exist. MEASURE: Proportion of time during the reporting period that clients were absent without authorization
Related Definitions: Elopement - Absent from the facility without authorization regardless of leave status; multiple elopement events for the same client during the same reporting period should be included as separate events in the numerator CURRENT IMPLEMENTATION STATUS: SOURCE OF DATA: MIS POPULATIONS: SETTINGS: ISSUES: INDICATOR: O8 ADVERSE OUTCOMES: PLACEMENTS IN 24 HOUR SUPERVISED TREATMENT PROGRAMS FOR CHILDREN AND ADOLESCENTS ISSUES: The children's workgroup recommended this indicator be changed to assess the children living in home like environments. Thus this indicator has been replaced by indicator Q9a "Percent Living in a Family-like Setting for Children and Adolescents with a Serious Emotional Disturbance" INDICATOR: O9 MORTALITY: HEALTH STATUS OF THE SERVED POPULATION AS MEASURED BY THE STANDARDIZED MORTALITY RATE AND AVERAGE AGE OF DEATH. RATIONALE FOR USE: Mortality rates are commonly used as global measures of health status for populations (Grob, 1983; Zopf, 1992). There are increasingly being used as indicators of performance of public health efforts; for 9example, mortality rates are used a number of times in Healthy People 2000 as performance measures. In addition, there is a long and extensive literature indicating that persons with mental illness die at higher rates and at younger ages from nearly all causes, both natural and medico legal (i.e., homicide, suicide, or accidents/injuries) (e.g., Dembling, 1995; Segal & Kotler, 1991; Winokur & Black, 1987; Babigian & Ordoroff, 1969). This literature provides compelling evidence to track mortality as a measure of health status for persons receiving mental health services. APPROACH TO MEASURE: While few states monitor this information, this was considered an important indicator for monitoring the health status of persons with mental illnesses even though the incidence of such occurrences might be low. Various alternative measures for monitoring this indicator are proposed below. MEASURE 1: The crude mortality rate (CMR) for the population of persons who received at least one service in the past year.
Measure 3. The average number of years of life lost (YLL) for service recipients who died during the past year. The YLL is defined as the difference between the age at death and the current life expectancy for an individual.
BURDEN: The burden of calculating these measures depends on how the data are collected. One option is the electronic linking of enrollment or client registry records with death records state Departments of Public Health or vital statistics agencies. This linking requires some technical capacity, considerable data processing resources, and probably requires a data sharing agreement with another agency. Alternatively, if a system tracks deaths of service recipients in an ongoing way, these records would obviate the need for an electronic match. Even if such a system is in place, overall population death records or at least summary statistics would need to be obtained for Measure 2. CURRENT IMPLEMENTATIONS STATUS: SOURCE(S) OF DATA: Management Information Systems, encounter data, vital statistics/public health authority death records, other mortality tracking system. POPULATIONS: SETTINGS: ISSUES: Several points should be made, particularly with respect to use and interpretation of this indicator. First, as with other measures, appropriate risk adjustment methods need to be employed before certain comparisons can be made; this is particularly important for the first measure, since the SMR adjusts for age, sex and the overall mortality rate of a geographic area by definition. Second, mortality is the result of complex processes that may be influenced by events from the immediate and the more distant past. As such, mortality may be influenced by events occurring before the period for which performance is to be measured. Unless these events are irreversible, however, we can expect successful service interventions aimed at improving the health status of a population to be reflected in these measures. Third, this indicator is most useful when the served population is large, for example in a statewide system. If the system serves only a relatively small number of persons, random variation over time may be misinterpreted as reflecting system performance. Workgroup Chair: Craig Colton, Utah INDICATOR: O10: RECOVERY/PERSONHOOD/HOPE RATIONALE FOR USE: This is the most critical emergent concept and goal in the treatment of mental illness and is related to a sense of the loss of self that is associated with mental illness. It is multidimensional in nature and subsumes hope, dignity, self-respect, self-mastery, self esteem, self worth and a sense of empowerment. APPROACH TO MEASURE: The recovery workgroup recognized that measures related to recovery are under development. Several members of the 16 State study are working with consumers in their states to convene a series of focus groups to develop a common measure of recovery. The 16 State study focus group effort will be completed by April, 2001. These focus groups will explore key domains associated with mental health recover: resources, choices, independence, connections with others, hope, and services and staff. Based on input from these focus groups, a draft instrument will be developed for pilot testing by states. MEASURE(S): Being developed
CURRENT IMPLEMENTATION STATUS: SOURCE OF DATA: Consumer Survey POPULATIONS: SETTINGS: ISSUES: WORKGROUP CHAIR: Vijay Ganju, NRI INDICATOR: O11: PERCENTAGE OF CONSUMERS WHO EXPERIENCE REDUCED IMPAIRMENT FROM SUBSTANCE ABUSE. RATIONALE FOR USE: Large proportions of persons with mental illness are also substance abusers. To achieve some of the outcomes that are the objectives of the system, the substance abuse component must also be addressed. MEASURE(S):
CURRENT IMPLEMENTATION STATUS: SOURCE OF DATA: Clinician Report; Self Report POPULATIONS: SETTINGS: ISSUES: The Substance Abuse Impairment Workgroup is conducting a survey of 16 State Study states to ascertain what form this indicator can be reported. The survey is attached below. WORKGROUP CHAIR: Jack Wackwitz, Colorado
Please attach copies of any instruments you use to assess comorbid substance abuse.
State ________________________
If YES, BUT ONLY ON SOME CONSUMERS: Please describe the conditions that must exist in order for an assessment to take place. Also indicate what groups of consumers are assessed. ___________________________________________________________ Please list and describe the screening instruments: ___________________________________________________________ Does the assessment result in a scale indicating the degree of Substance Abuse? Is the assessment conducted on more than one occasion? Please describe the procedures you use to assess change.
INDICATOR: O12 LIVING SITUATION OF MENTAL HEALTH CONSUMERS RATIONALE FOR USE: Independent living is an important goal for persons with serious mental illness. Though housing status is affected by a variety of factors, systems that address and support independent community living are expected to show a higher proportion of individuals living in independent settings. The proportion of persons living in each Living Situation is a measure of system performance. APPROACH TO MEASURE: Examining a person's change in Living Situation across time (e.g., annually) provides a Performance Indicator of the client's level of functioning and ability to perform activities of daily living. A change in a client's residential arrangement during mental health treatment/services may reflect the level of recovery and/or increased need for services. Living situation is comprised of two major components. First, what is the Place of Residence (i.e., structure or 'four walls') in which the person is living? Examples of Place of Residence may include a Private Residence (e.g., house or apartment), group home, skilled nursing facility, jail, or homeless. Second, what level of support is needed to maintain in that 'structure'. For example, one person may live with a family member and require daily support to remain stable in the home. Another person may live with a family member and require no support. Level of support only applies to a private residence because all other living situations provide 'support' as a component of the program. Recommended Living Situation Categories: Individual's Primary Living Situation Private Residence without support (e.g., individual's own house, apartment, trailer, hotel, dorm, barrack) Private Residence receiving support (e.g., house, apartment, trailer, hotel, dorm, barrack) 24-Hour Residential Care (e.g., Group Home, Board and Care, Foster Home, Crisis Residential, Rehabilitation Center, Children's Residential Care/Treatment Facility) Institutional Setting (e.g., Skilled Nursing/Intermediate Care Facility, Institute of Mental Disease (IMD), Inpatient Psychiatric Hospital, Psychiatric Health Facility (PHF), Veterans Affairs Hospital, State Hospital) Jail/ Correctional Facility (e.g., Jail, Correctional Facility, Prison, Youth Authority Home, Juvenile Hall) Homeless/ Shelter (e.g., no identifiable residence, on the street, in a shelter) Other Unknown/Not Reported Use of the Indicator: A single, point in time, measure of Living Situation provides system level information on clients' place of residence. This may be reported at Admission, at the time of the report, and/or at discharge. This point in time measurement describes the mental health system's client population by type of residence. It is a system level performance indicator. To use as a client outcome measure, Living Situation is collected across time, using two or more data points. By examining a client's Living Situation at two or more points in time, you obtain a measure of change. For example, if a client were living in a 24-hour residential care facility at admission and in a private residence with support at one year, this client would show an improved outcome on Living Situation. Collecting this outcome measure on an annual basis provides a macro view of the client's progress across time. Many clients move several times during a year. A program or region may choose to collect this measure more frequently, and/or with additional categories to provide additional levels of detail. However, at a state level, this more global view of change in Living Situation may be adequate. Proposed Frequency of Reporting Living Situation:
Definitions: Private Residence: Individual lives in a house, apartment, trailer, hotel, dorm, barrack, Single Room Occupancy (SRO). Without Support: Individual lives in a Private Residence and does not require routine or planned support to maintain his/her independence in the living situation. Receiving Support: Individual lives in a private residence and receives support to maintain independence in his/her private residence. This may include individualized services to promote recovery, manage crises and symptoms. Support services are delivered in the person's home environment. Support services may be delivered by another individual living in the home or provided by a person/organization periodically visiting the home. 24-Hour Residential Care: Individual resides in a residential care facility with care provided on a 24 hour, 7 day a week basis. This level of care may include a Group Home, Therapeutic Group Home, Board and Care, Foster Home, Therapeutic Foster Care Facility, Crisis Residential, Residential Treatment, or Rehabilitation Center, or Residential Care/Treatment Facility Institutional Setting: Individual resides in an institutional care facility with care provided on a 24 hour, 7 day a week basis. This level of care may include a Skilled Nursing/Intermediate Care Facility, Institute of Mental Disease (IMD), Inpatient Psychiatric Hospital, Psychiatric Health Facility (PHF), Veterans Affairs Hospital, or State Hospital. Jail/ Correctional Facility: Individual resides in a Jail and/or Correctional facility with care provided on a 24 hour, 7 day a week basis. This level of care may include a Jail, Correctional Facility, Prison, Youth Authority Facility, Juvenile Hall, Boot Camp, or Boys Ranch. Homeless: A person has no permanent place of residence where a lease or mortgage agreement between the individual and the owner exists (TANF: CA SB 1357). A person is considered homeless if he/she lacks a fixed, regular, and adequate nighttime residence and/or his/her primary nighttime residency is:
Other Unknown: Information on an individual's residence is not available. MEASURE(S):
CURRENT IMPLEMENTATION STATUS:
POPULATIONS: SETTINGS: ISSUES:. INDICATOR: O13 PERCENTAGE OF CONSUMERS ARRESTED. RATIONALE FOR USE: Often as a result of inadequate or inappropriate community placements, an increasing number of people with mental illness are involved inappropriately with the criminal justice system. This is a surrogate measure for adequacy of funding and development of community placements. This measure looks at the potential for mental health systems to cost-shift to public safety agencies if mental health services are not available or effective and is not meant to indicate or imply that individuals with a mental health concern pose any specific dangerousness to the general public. MEASURE(S):
CURRENT IMPLEMENTATION STATUS: POPULATIONS: SETTINGS: SOURCES OF DATA: ISSUES: The length of time over which the number of arrests is measured is related to the reliability of the data source. If official records were used across the board, it would be reasonable to extend the period of time. For instance, if there are six months between assessments, arrests for the whole six months could be measured. In some instances, however, it may not be possible to collect official record data on all consumers being assessed and self-report may be the only source. In this situation, research has demonstrated that self-report is reliable only up to a period of 30 days. WORKGROUP CHAIR: Lucille Schacht, NRI INDICATOR: O13(B) AVERAGE NUMBER OF DAYS OF INCARCERATION PER CONSUMER IN PAST 30 DAYS. RATIONALE FOR USE: Often as a result of inadequate or inappropriate community placements, an increasing number of people with mental illness are involved inappropriately with the criminal justice system. This is a surrogate measure for adequacy of funding and development of community placements. This measure looks at the potential for mental health systems to cost-shift to public safety agencies if mental health services are not available or effective and is not meant to indicate or imply that individuals with a mental health concern pose any specific dangerousness to the general public. MEASURE:
BURDEN: Although the item may not be reported accurately by all consumers, matching mental health and criminal justice system records may be too onerous. CURRENT IMPLEMENTATION STATUS: POPULATIONS: Adults with SMI who were incarcerated one or more days within the last 30 prior to admission. SOURCES OF DATA: ISSUES: The length of time over which the number of incarcerations is measured is related to the reliability of the data source. If official records, such as jail records, were used across the board, it would be reasonable to extend the period of time. For instance, if there are six months between assessments, incarcerations for the whole six months could be measured. In some instances, however, it may not be possible to collect official record data on all consumers being assessed and self-report may be the only source. In this situation, research has demonstrated that self-report is reliable only up to a period of 30 days. WORKGROUP CHAIR: Lucille Schacht, NRI O13: Percent of Children and Adolescents with SED Involved in the Juvenile Justice System Percentage of children and adolescents with SED who are involved with the juvenile justice system. Measured at admission and 6 months and 12 months post admission. Numerator: Total number of children and adolescents with SED who had at least one arrest during the reporting period. Denominator: Total number of children and adolescents with SED being served at admission, 6 (12) months post intake. Percentage of youth who show improvement in arrests during the reporting period. Numerator: Total number of children and adolescents with SED being served where [# arrests at admission - # arrests at 6(12) months] is greater than zero. Denominator: Total number of children and adolescents with SED who report being arrested during the reporting period prior to admission and are reassessed. S1 Consumer/Family member involvement in policy development, quality assurance & planning Consumer Participation in Planning: Donna Stimpson (CT), w/ Deb Kupfer (CO, Irwin Kerzner (IL), Kitty Hepfer (SC), Pat Dunston (DC), Judy Gosney (WA), Melinda Murtaugh (VT), and Marie Danforth (CMHS) Planning a reduced survey of state planners. Focus on 2 indicators: Comments-may need to also separate out parents of child consumers Time frame-Teleconference in Sept-after state plans are due. Survey of states will be ready by October/November. INDICATOR: S3 AVERAGE RESOURCES EXPENDED ON MENTAL HEALTH SERVICES. RATIONALE FOR USE: MEASURE(S): The total amounts of direct service expenditures on mental health services in one year divided by (1) the total number of enrolled (or general population) and (2) the total number of persons who received at least one mental health service. Expenditures are depicted by (1) type of service and by (2) the numbers of units of service and (3) cost per unit of service provided. 1(a). Numerator: Denominator: 1(b). Numerator: Denominator: CURRENT IMPLEMENTATION STATUS: POPULATIONS: SETTINGS: SOURCE OF DATA: Administrative records WORKGROUP CHAIR: Nancy Callahan: (other workgroup members are: Eva Jakuba & Linda Frisman (CT), Steve Reeves (MO), Deb Kupfer (CO), Denny Geertsen (UT), Judy Gosney (WA), Sudha Mehta (NY). Please find attached three tables for collecting information on the number of unduplicated clients, units, and dollars for Your State. Some states may only be able to provide some of the requested data. However, Please complete as much of each table as possible. If possible, provide the additional level of detail for Age (Child: 0-17 Years and Adult/Older Adult: 18 + Years) and Service Category (Inpatient Services, Outpatient Services, Day Treatment/Residential Services), and Medicaid and Non-Medicaid dollars. Many states will NOT be able to complete this level of detail. Please provide as much information as you have available! 1. Statewide total of unduplicated clients seen in Fiscal Year 1998/99 (TOP LEFT BOX ON TABLE). Important: This number should include all mental health clients who received one or more publicly funded mental health services, across all ages (>0 through elderly) and all service categories for FY 1998/99. This includes all clients receiving variants of publicly funded psychiatric inpatient services, and all "community" or outpatient clients. For example, include clients receiving mental health services from community inpatient psychiatric hospitals, State Hospitals, crisis, residential facilities, ACT, outpatient, etc. These clients have a primary mental health diagnosis or are receiving treatment from a mental health service provider. Dual diagnosis clients with a primary mental health diagnosis are included. Forensic clients receiving mental health services in the community are included. Jail diversion clients receiving mental health services are also included. Do Not Include: Substance Abuse Only Clients Identify Unique Characteristics for your state: Please list any Qualifiers (Exclusions or Inclusions) for your state. For Example:
ADDITIONAL BREAK DOWN OF CLIENT POPULATION AGE:
Unduplicated Clients by Age: MEDICAID/ NON-MEDICAID: Unduplicated Non-Medicaid Clients by Age and Total SERVICE CATEGORY (Inpatient Services, Outpatient Services, Day Treatment / Residential Services Unduplicated Clients within Service Category:
Count the number of clients receiving services for EACH Service Category described below: Inpatient Services (Units are Days) State Hospital Crisis Services (Units are Contacts/Minutes or Hours) Crisis Services (Including Crisis Contacts, Crisis Stabilization, Mobile Crisis) Outpatient Services (Units are Contacts/Minutes or Hours) Outpatient Services (including Medications, Individual, Group, Family) Day Treatment / Residential Services (Units are Full or Partial Days)
Using the data "Rules" described above, please list the Total Units of Service for Each Service Category. NOTE: It is not logical to provide Total Units of Service across ALL SERVICES because "Day Units" and "Contact Units" can not be combined. Total Units of Inpatient Services (Units are Days) and By Age State Hospital Crisis Services (Units are Contacts/Minutes or Hours)
Total Units of Outpatient Services (Units are Contacts/Minutes or Hours) and By Age Outpatient Services (including Medications, Individual, Group, Family) Total Units of Day Treatment / Residential Services (Units are Full or Partial Days) NOTE: Some States may be able to separate Day Treatment from Residential Services. In this instance, Please report the data separately so we can examine the differences in these two types of services. Full or Partial Day Treatment Services Important: This number may be calculated from the dollars the state is paying for mental health services across several categories including Medicaid and Block Grant dollars. Alternatively, It may be obtained from Financial statements /Cost Reports submitted by the regional centers/ mental health entities across the state to the Mental Health State Authority. This may include all monies available in your system for FY 1998/99 for State dollars and federal match disproportionate share monies used to supplement inpatient mental health services, etc. Do Not Include:
Unique Characteristics:
Using the data "Rules" described above, please list the Total Dollars for Each Service Category. Total Dollars for Inpatient Services (Units are Days) and By Age State Hospital Total Dollars for Crisis Services (Units are Contacts/Minutes or Hours) Crisis Services (Including Crisis Contacts, Crisis Stabilization, Mobile Crisis) Total Dollars for Outpatient Services (Units are Contacts/Minutes or Hours) and By Age Outpatient Services (including Medications, Individual, Group, Family) Total Dollars for Day Treatment / Total Dollars for Residential Services (Units are Full or Partial Days) NOTE: Some States may be able to separate Day Treatment from Residential Services. In this instance, Please report the data separately so we can examine the differences in these two types of services. Full or Partial Day Treatment Services Computation and Display: Thank you for your help. Please provide as much information on your state as possible. If you have questions, please e-mail Nancy Callahan at nancycal@dcn.davis.ca.us or call 530-758-8815 |
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