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Remarks by
A. Kathryn Power, M.Ed.
Director

Center for Mental Health Services
Substance Abuse and Mental Health Services Administration
U.S. Department of Health and Human Services

American Psychological Association Symposium on Evidence-Based Practices for Individuals With Serious Mental Illnesses: Evidence-Based Practices: Learning from the Numbers

August 12, 2006
New Orleans, LA

PowerPoint version

Attached is the text prepared for delivery; however, some material may have been added or omitted at the time of delivery.

[SLIDE 1. Title slide]

Lord Kelvin was a Scottish mathematician and physicist during the late 1800s. In his mind, numbers equaled knowledge. As he expressed it, "When you can measure what you are speaking about…and express it in numbers, then you know something about it; but when you cannot measure it, when you cannot express it in numbers, your knowledge is of a meagre and unsatisfactory kind." We may deal with incredibly complex mental illnesses, but we still can learn from the numbers, particularly as they apply to evidence-based practices (EBPs) for individuals with serious mental illnesses (SMI).

More than 15 million American adults have a diagnosable SMI. Up to 9 percent of our children have a serious emotional or behavioral problem. These numbers alone tell us that we need to make available the best treatments possible to improve the lives and futures of those who are affected. Psychology, of course, offers many best practices. Your field is one of four core disciplines for promoting sound behavioral health, together with psychiatric nursing, psychiatry, and social work.

Other numbers speak of the amazing capacity of individuals to recover. I’ll summarize just one study, which also highlights the value of psychological practices to aid recovery. During the 1950s, George Brooks—a hospital director—treated residents with schizophrenia with a new drug called thorazine. He found that the drug alone could not enable many patients to leave the hospital successfully. Brooks helped design a psychosocial rehabilitation program to help them develop social and work skills, cope with daily living, and gain confidence. Many patients who had not responded well to the drug became well enough to return to their community. Thirty years later, researchers conducted a followup study. What did they find?—Almost 70 percent of the individuals had significantly improved. A full 45 percent no longer had any signs or symptoms of a mental illness.

People can recover from serious mental illnesses and they do recover! But their recovery often hinges on their access to services that best meet their needs; in other words, EBPs, or practices that have been proven effective in producing positive outcomes. We, as providers and decisionmakers, have to look to the numbers to identify which practices qualify as EBPs…to measure the extent of their effectiveness across different groups…to identify gaps in treatment and application…and to guide future research efforts.

The Substance Abuse and Mental Health Services Administration (SAMHSA) is engaged in a long-term initiative to accomplish each of these objectives. Together with the National Institute of Mental Health, we are working to develop, distribute, and increase the use of EBPs. In a few minutes, Kevin Hennessey, SAMHSA’s science-to-service coordinator will describe some of our key activities. I’ll be discussing some related activities conducted by the Center for Mental Health Services (CMHS), which is one of three centers within SAMSHA.

My center contributes to SAMHSA’s overall science-to-service initiative and we also support more targeted efforts. We do not conduct basic research. Instead, we identify evidence-based practices and move these practices into the field. We use an array of strategies to promote evidence-based methods of engagement, outreach, assessment, treatment, and prevention. I will briefly describe some of these strategies today.

[SLIDE 2. Resource kits available]

A few years ago, CMHS began developing resource implementation kits for several EBPs. This slide shows the first set of kits. We then awarded grants to various States across the Nation to field test the kits in different settings and for different populations. We currently are using feedback from the field to refine the kits. You can download any of the kits for free from the SAMHSA Web site. Each kit contains all of the resource materials you should need to replicate the intervention with fidelity.

[SLIDE 3. Resource kits being developed]

We now are working on several more kits. Our first set of kits targeted a specific EBP for treating individuals with SMI in public mental health clinics. Our second set of kits will address broader populations and offer treatment options for different service settings. For example, our kit for older adults is focused on late-life depression. Older adults often experience depression in conjunction with other issues, such as chronic physical health problems. They also tend to seek treatment for their depression from their primary care physician. Our kit will describe EBPs for treating late-life depression in relation to other health issues.

Our new kits also will describe practices of use to providers outside of mental health settings. The rationale is in the numbers. Older adults are represented disproportionately in suicide numbers. Up to 75 percent of those who commit suicide visited a primary care physician within the preceding month. This is a reality of mental health care: we need to better engage several service systems, and particularly primary health care, in recognizing, assessing, and responding effectively to serious mental illnesses.

Our second set of kits is in the development stage. We’re doing our best to learn from the field about what information is needed and how we can best present it. There are many wonderful EBPs available, but the field isn’t taking advantage of them and using the full protocols. Why?— Because much of the material is technical and providers aren’t sure how to access or apply it. They haven’t the time to sort out what is relevant to the populations they serve. It often isn’t clear whether a practice fits within their real-world constraints. Many interventions are tested in controlled settings and they often are developed without consideration for how providers and complex systems will implement them.

The information available about EBPs can be overwhelming! In fact, there are more than 550 named therapies already! Our new kits will provide a shorthand approach to determining if the EBPs presented in our kits are right for you. They will tell you about levels of evidence and what you need to adopt a practice. We will give you a framework for deciding if a practice fits your population, resources, and training capacity. You will be able to reach decisions with these real-world factors in mind.

Our next stage will be to package the information in ways that encourage examination and application. To accomplish this, we’re transforming our approach.

[SLIDE 4. Innovations]

Our new set of kits will be presented in an interactive CD-ROM format. We’ve researched adult learning theory to identify how best to organize and present information. We’re asking social marketing experts to help us create a useful, engaging, and usable product. I’m excited about our potential to design kits that will be practical and powerful tools for implementation.

I want you to think of the word "kit" as an acronym for what we are striving to achieve through EBPs. For CMHS, K-I-T stands for

[SLIDE 5. K-I-T]

Knowledge Informing Transformation. Our kits cover a variety of services. Their broad scope reflects an ongoing transformation of mental health services, as called for by the President’s New Freedom Commission on Mental Health. Through transformation, we are creating a service delivery system that is consumer driven. Through transformation, individuals with SMI will have access to all of the comprehensive services that can help to achieve and sustain recovery.

The word "health" derives from the Greek word meaning "whole." Only by seeing the "whole" individual can we truly promote the mental health of individuals with SMI. This "holistic" approach goes beyond symptom management to consider other aspects. In the Brooks study I mentioned previously, pathways to recovery included having a home, a job, social relationships, and reintegration into their communities. These supports contributed to the consumers’ self-sufficiency, relearned optimism, and a sense of hope. According to consumers, hope—and the opportunity to regain control of their own lives and futures—is essential to recovery.

The centrality of consumers to everything we try to achieve through EBPs is paramount. This includes our efforts to measure the effectiveness of EBPs. Consumer outcomes are the bottom-line for mental health services, just like profit is the bottom line in businesses. We, however, measure gains and losses in very human terms. And, yet, we must find ways to quantify these sometimes subjective terms. To repeat Lord Kelvin, "when you cannot measure it, when you cannot express it in numbers, your knowledge is of a meagre and unsatisfactory kind."

The ongoing move toward consumer-driven care significantly affects the kind of data we should collect. Most important, the outcomes we measure should incorporate the consumer’s perspective so that we can better understand the benefits and risks of each intervention for them.

Last year, SAMHSA introduced a set of national outcomes measures, or NOMs, for measuring the effectiveness of mental and substance abuse programs. Fifty years ago, when we first began to develop performance measures for mental health, we focused on population data and service input measures, such as the number of hospital beds. Our NOMs take a different approach. They reflect a transformed view of effective mental health care because they focus on positive outcome measures for consumers.

[SLIDE 6. Selected NOMs]

Our NOMs include such outcomes as improved functioning, greater stability in living conditions, increased employment or education, social connectedness, and better access to services. While each individual with a serious mental illness will have a unique goal for treatment, the core outcomes they seek reflect very basic desires. Our NOMs represent the outcomes that consumers tell us are most important to them. They want to be able to live a life in their community. They want to live independently in a place called home, to hold a paying and meaningful job, to have friends, and to avoid the spirit-breaking experiences of hospitalization, incarceration, or substance abuse.

One of our NOMs is the use of EBPs. EBPs represent the consumers’ greatest hope of achieving any and all of the other outcomes. We’ve embedded the NOMs in State mental health block grants. The States now must report annually on their progress related to the NOMs.

We also use our service grants to leverage the use of EBPs. By making the use of EBPs a grant requirement, we promote their use and we gain valuable insight into the challenges and successes of implementation.

SAMHSA and CMHS are committed to promoting the use of EBPs, but the greatest challenges—and opportunities—for their implementation rest with you. We can make the information available, but only you can apply it effectively.

A major challenge you face with EBP implementation is adaptation: a lot of it often is needed, yet there are no rules to guide it. Those who adapt practices must be able to justify why. They have to ensure the practice remains science driven and research guided. How can they measure success?

Let’s consider some of the issues around adaptation. We’re meeting in a city that has experienced tremendous and continuing trauma in the wake of Hurricane Katrina. One practice for treating severe trauma requires 18 to 20 sessions of psychotherapy. In the real world, In the real world the average number of sessions a consumer might be willing to attend may range from seven to five or even less. So how can you adapt this practice to a group of elder consumers in rural settings? Can you reframe the practice to better fit the way that people seek help, yet still meet their needs? Can some of the information be provided through different channels than outpatient visits? Many individuals will not have the time or resources to commit to 18 sessions.

Look around you at the incredibly diverse population of New Orleans. Can you shape this practice so it is equally effective across cultures and socioeconomic divisions? Can you take it out of the city into rural areas? Evidence-based practices are dynamic and evolving. Our lessons from the field indicate that practices often must be adapted to be appropriate for specific populations, settings, and funding mechanisms.

Look to and learn from evaluation data. Each attempted implementation of an EPB is an opportunity to learn more about it…to explore the conditions under which it can be used with fidelity and to good effect. Each attempt presents opportunities to add to the knowledge base. Changes that reduce its effectiveness will be a threat to fidelity. On the other hand, changes that improve outcomes will be innovations that should be included as core components.

Implementation is not an event: it’s a process. You implement some core practices, evaluate outcomes, get some feedback, and use the results to make incremental quality improvements—each step of the process is a move towards better treatment and more positive outcomes for consumers.

You are the vanguard in improving mental health services. Consequently, I’m asking you today to think about your role in promoting the use of EBPs. SAMHSA and CMHS have been put in the position of making many of the front-end decisions about EPBs, such as which ones work best for which populations. Do you want to give up that role? I’d rather we shared the role.

SAMHSA has developed a National Registry of Evidence-Based Programs and Practices for substance abuse and mental health. We need developers to submit practices for review. You can encourage developers with good practices to apply…and you can help them through the process. We are looking for scientific evidence that a practice is effective and utility measures that show it can be implemented effectively. To meet our requirements, developers should be collaborating with providers who are using their models. You can use your experience with a practice to ensure the model reflects real-world situations…clearly identifies core components…and offers explicit manuals and other tools for successful implementation.

In addition, your field can continue working to expand the knowledge base. Emerging practices that remain to be studied through research and service include peer support, consumer-run programs, and consumer engagement in planning and decisionmaking.

You also can acknowledge those who are expanding the knowledge base around implementation. I’ve been told there I have been told that tenure-track positions for academic psychologists involved in the work of implementation are rare. Implementation science is not the hot discipline in academic psychology. Why? For policymakers, State planners, program administrators, and researchers, information about implementation is as important as information about the intervention. Without this information, how can we determine if the practice or the practitioner needs improvement? Implementation is a substantive and critical area, with a growing science base. Implementation has many commonalities with change management. In business schools, change management is a highly respected and rewarded area. Implementation should be valued equally by those engaged in the business of recovery.

You can identify and develop leaders among you—individuals whom the National Implementation Research Network calls "purveyors." In its just-completed monograph on implementation research, the Network defines purveyors as an individual or group of individuals who actively work to implement a practice or program with good effect and fidelity." These are individuals who push, pull, and promote EBPs through those challenging months, and often years, before full implementation.

David Fisher is a former clinical director of the New Mexico State Hospital. He explored the difficulties of initial implementation in his article entitled "The going gets tough when we descend from the ivory tower." He made this observation about the real-world environment of applied psychology. "It is full of personnel rules, social stressors, union stewards, anxious administrators, political pressures, interprofessional rivalry, staff turnover, and diamond-hard inertia." He failed to emphasize that it also is filled with dedicated individuals capable of meeting these challenges head-on to improve services for individuals with SMI. You are here at this meeting because you have faith in your profession to heal.

EBPs present our greatest opportunity to help consumers toward recovery and a better and more hopeful future. We know this from research and practice: Good outcomes for consumers occur when effective practices are implemented effectively.

[SLIDE 7. If we can...]

If we measure how well a practice works…and we measure how well we work at putting it into practice—and we learn from these data—we can change lives. This is knowledge of a very satisfactory kind. Thank you.

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