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Consumer/Survivor Information
Challenging Stereotypes: An Action Guide


For More Information

A growing number of groups are working to eradicate stigma and discrimination. At the same time, researchers are providing better understanding of the prevalence of stigma and discrimination and their effects.

This section furnishes links to groups with a common interest in the impact of widespread misperceptions on people who are coping with and recovering from mental illnesses.

Included is a list of informative books, including “how-to” guides for working with the media.

Mental Health Organizations with an Anti-Stigma/Anti-Descrimination Focus

Federal

Center for Mental Health Services
Substance Abuse and Mental Health
Services Administration
Office of External Liaison

5600 Fishers Lane, Room 15-99
Rockville, MD 20857
Tel: 301-443-2792, Fax: 301-443-5163
National Institute of Mental Health
Anxiety Disorders Education Program
Depression Education Program
6001 Executive Blvd, R8184, MSC9663
Bethesda, MD 20892-9663
Tel: 301-443-4513, Fax: 301-443-4279
E-mail: nimhinfo@nih.gov
Center for Mental Health Services
SAMHSA's National Mental Health Information Center

P. O. Box 42557
Washington, DC 20015
Tel: 800-789-CMHS (2647), (TDD) 866-889-2647
E-mail: nmhic-info@samhsa.hhs.gov
Web: mentalhealth.samhsa.gov


Non-Government

Advocacy Unlimited
300 Russell Road
Wethersfield, CT 06107
Tel: 860-667-0460, Fax: 860-667-2240
Web: www.mindlink.org
Anti-Stigma Project
1521 South Edgewood Street, Suite C
Baltimore, MD 21227
Tel: 410-646-0262, 800-704-0262
Fax: 410-646-0264
E-mail: ooomd@earthlink.net
Web: www.onourownmd.org
Breaking the Silence
NAMI Queens/Nassau
1983 Marcus Avenue, C-103
Lake Success, NY 11042
Tel: 516-326-0797, Fax: 516-437-5785
E-mail: btslessonplans@aol.com
Web: www.btslessonplans.org
Carter Center
Mental Health Program
One Copenhill 453 Freedom Parkway
Atlanta, GA 30307
Tel: 404-420-5156, Fax: 404-420-5158
E-mail: carterweb@emory.edu
Web: www.cartercenter.org
Center for Psychiatric Rehabilitation
Boston University
940 Commonwealth Avenue West
Boston, MA 02215
Tel: 617-353-3549, Fax: 617-353-7700
E-mail: psyrehab@bu.edu
Web: http://www.bu.edu/cpr/
CONTAC (Consumer Organization and Networking Technical Assistance Center)
West Virginia Mental Health
Consumers Association
P.O. Box 11000
Charleston, WV 25339
Tel: 888-825-Tech, Fax 304-345-7303
E-mail: usacontac@contac.org
Web: www.contac.org
Depression and Bipolar Support Alliance (DBSA)
(formerly the National Depressive and Manic-Depressive Association)
730 North Franklin Street, Suite 501
Chicgao, IL 60610
Tel: 1-800-826-3632, Fax: 312-642-7243
Web: www.dbsalliance.org
Erasing the Stigma of Mental Illness
2047 El Cajon Boulevard
San Diego, CA 92104
Tel: 619-543-0412, Fax: 619-543-0748
E-mail: mhasd@flash.net
Give Me Shelter (GMS Arts Education)
4604 North Saginaw Road, Suite L
Midland, MI 48640
Tel: 517-631-2493, Fax: 517-631-2496
E-mail: shelter@midglad.cog.mi.us
IAPSRS (International Association of Psycho-Social Rehabilitation Services)
601 North Hammonds Ferry Rd, Suite A
Linthicum, MD 21090
Tel: 410-789-7054, Fax: 789-7675
(TDD): 410-789-7682
Web: www.iapsrs.org
Lichtenstein Creative Media, Inc.
25 West 36th Street; 11th Floor
New York, NY 10018
Tel: 212-967-1200, Fax: 212-643-6500
E-mail: LCM@LCMEDIA.com
Web: www.lcmedia.com
Massachusetts Anti-Stigma Campaign
P.O. Box 598
441 Pleasant Street
Nothhampton, MA 01061-0598
Tel: 413-584-1460, Fax: 413-586-1121
E-mail: antistigma@aol.com
NAMI Anti-Discrimination Campaign
Colonial Place Three
2107 Wilson Blvd., 3rd Floor
Arlington, VA 22201
Tel: 800-950-6264, 703-524-7600
Fax: 703-524-9094
Web: www.nami.org
National Empowerment Center
599 Canal Street
Lawrence, MA 01840
Tel: 978-685-1518, 1-800-power2u
Fax: 978-681-6426
Web: www.power2u.org
National Mental Health Association
2001 N. Beauregard Street - 12th Floor
Alexandria, VA 22311
Tel: 703-838-7528, 800-969-6642
Fax: 703-684-5968
Web: www.nmha.org
National Mental Health Awareness Campaign
750 17th Street, NW, Suite 1100
Washington, D C 20006
Tel: 202-778-2309, Fax: 202-778-2330
E-mail: info@nostigma.org
Web: www.nostigma.org
National Mental Health Consumers’ Self-Help Clearinghouse
1211 Chestnut Street, Suite 1100
Philadelphia, PA 19107
Tel: 800-688-4226, Fax: 215-636-6310
E-mail: info@mhselfhelp.org
Web: www.mhselfhelp.org
National Stigma Clearinghouse
245 Eighth Avenue, #213
New York, NY 10011
Tel: 212-255-4411
E-mail: stigmanet@webtv.net
Web: http://www.stigmanet.org
Pathways to Promise
5400 Arsenal Street
St. Louis, MO 63139-1494
Tel: 314-644-8400, Fax: 314-644-8834
E-mail: pathways@mimh.edu
Web: www.pathways2promise.org
Reclamation (Positive Visibility)
2502 Waterford Drive
San Antonio, TX 78217
Tel: 210-822-3569
Stamp Out Stigma (SOS)
1572 Winding Way, #A
Belmont, CA 94002
Tel: 650-592-2345
E-mail: carmensos@aol.com
University of Chicago Center for Psychiatric Rehabilitation
7230 Arbor Drive
Tinley Park, IL 60477
Tel: 708-614-4770
E-mail: p-corrigan@uchicago.edu
Web: www.ucpsychrehab.org

Information on the Internet

The information below is subject to change and the addition of new sites. Use Internet search engines to find additional anti-stigma and anti-discrimination information on the Internet.

Federal

Center for Mental Health Services
SAMHSA's National Mental Health Information Center

mentalhealth.samhsa.gov
U.S. Surgeon General
www.surgeongeneral.gov
Publications and information on health issues.
National Institute of Mental Health
Home Page

www.nimh.nih.gov
Site of National Institutes of Health/National Institute of Mental Health (NIH/NIMH).


Non-Government

Center for Psychiatric Rehabilitation
http://www.bu.edu/cpr/
Research and training at Boston University.
National Mental Health Assoc. Stigma Watch www.nmha.org/newsroom/stigma/index.cfm
Sign up here for NMHA Stigma Alerts.
CineMania
http://www.cinemaniastigma.com
Invites interaction about media portrayal
National Mental Health Consumers’ Self-Help Clearinghouse
www.mhselfhelp.org
A consumer, ex-patient/survivor organization.
Cultural Environment Movement
A site for advocates for media diversity.
National Stigma Clearinghouse
http://www.stigmanet.org
Anti-stigma links and news briefs.
Lichtenstein Creative Media
www.lcmedia.com
A radio and documentary film producer.
MadNation
www.madnation.cc/
Advocacy news, opinion pieces, links.
Open the Doors
www.openthedoors.com
Campaign of the World Psychiatric Association.
Otto Wahl’s Home Page
http://uhaweb.hartford.edu/owahl
An anti-stigma resource site.
NAMI Electronic Stigma Alerts
http://www.nami.org/template.cfm?section=fight_stigma
Register here to receive NAMI stigma alerts.
University of Chicago Center for Psychiatric Rehabilitation
www.ucpsychrehab.org
Research and training programs.
National Empowerment Center
www.power2u.org
A consumer, ex-patient/survivor organization.

Researchers Interested in Stigma and Discrimination

The purpose of this list, first, is to let you know who are researchers currently working in the area of mental health and social inclusion. Second, it is to enable you to refer members of the media to nationally known experts who can provide accurate, research-based information.

Campbell, Jean
Missouri Institute of Mental Health
Program in Consumer Studies and Training
5400 Arsenal Street
St. Louis, MO 63139
Tel: 314-644-7829
E-mail: campbelj@mimh.edu
Web: http://www.cstprogram.org
Penn, David L.
University of North Carolina
Department of Psychology
Campus Box 3270
Chapel Hill, NC 27599
Tel: 919-843-7514
E-mail: dpenn@email.unc.edu
Corrigan, Patrick W.
University of Chicago
Center for Psychiatric Rehabilitation
7320 Arbor Drive
Tinley Park, IL 60477
Tel: 708-614-4770
E-mail: p-corrigan@uchicago.edu
Web: www.ucpsychrehab.org
Pescosolido, Bernice
Indiana University
Department of Sociology
744 Ballantine Hall
Bloomington, IN 47405
Tel: 812-855-3841
E-mail: pescosol@indiana.edu
Estroff, Sue E.
University of North Carolina
Deptartment of Social Medicine
School of Medicine
Campus Box 7240
Chapel Hill, NC 27599
Tel: 919-843-8076
E-mail: see@med.unc.edu
Phelan, Jo
Columbia University
Department of Sociomedical Sciences
600 West 168th Street
New York, NY 10032
Tel: 212-305-0406
E-mail: jcp13@columbia.edu
Farina, Amerigo
University of Connecticut
Deptartment of Psychology, U-20
Storrs, CT 06269-1020
Tel: 860-486-4929
E-mail: farina@psych.psy.uconn.edu
Rosenfield, Sarah
Rutgers University
Institute for Healthcare Policy Research
30 College Avenue
New Brunswick, NJ 08903
Tel: 732-932-6636
Gerbner, George
Cultural Environment Movement
234 Golf View Road
Ardmore, PA 19003
Tel/Fax: 610-642-3061
E-mail: ggerbner@nimbus.temple.edu
Safran, Stephen P.
Ohio University
College of Education
Athens, OH 45701
Tel: 740-593-4434
E-mail: safran@ohiou.edu
Hiday, Virginia Aldige
North Carolina State University
Department of Sociology, Box 8107
State University
Raleigh, NC 27695
Tel: 919-515-3114
E-mail: ginny_hiday@ncsu.edu
Steadman, Henry J.
Policy Research Associates
262 Delaware Avenue
Delmar, NY 12054
Tel: 800-444-7415
Lidz, Charles
University of Massachusetts
Department of Psychiatry
55 Lake Avenue, North
Worcester, MA 01655
Tel: 508-856-8716
E-mail: Chuck.Lidz@umassmed.edu
Streuning, Elmer L.
Columbia University
Deptartment of Epidemiology
100 Haven Ave., Apt. 31D
New York, NY 10032
Tel: 212-928-0631
Link, Bruce G.
Columbia University
Department of Epidemiology
100 Haven Ave., Apt. 31D
New York, NY 10032
Tel: 212-928-0631
E-mail: bgl1@columbia.edu
Stueve, Ann
Columbia University
Division of Epidemiology, PH 18
600 West 168th Street
New York, NY 10032
Tel: 212-305-6718
E-mail: cas11@columbia.edu
Markowitz, Fred E.
Northern Illinois University
Department of Sociology
DeKalb, IL 60115
E-mail: fredm@sun.soci.niu.edu
Teplin, Linda
Northwestern University
Medical School Psycho-Legal Studies Program
710 N. Lakeshore Drive, Rm 700
Chicago, IL 60611
Tel: 312-503-3500
Monahan, John
University of Virginia
School of Law
580 Massie Road
Charlottesville, VA 22903
Tel: 804-924-3632
E-mail: jmonahan@virginia.edu
Web: http://macarthur.virginia.edu/
Wahl, Otto F.
George Mason University
Department of Psychology
Fairfax, VA 22030
Tel: 703-993-1361
Web: http://uhaweb.hartford.edu/owahl

A Short List of Books

  1. Carter, Rosalynn. Helping Someone with Mental Illness. (New York, NY: Times Books/Random House, 1998)

    Mrs. Carter’s concern about the adverse effects of prejudice pervades this informative book. It furnishes resource lists of books, information clearinghouses, Web sites, and a directory of organizations.

  2. Deterline, Kim. Media Activist Tool Kit To Challenge Myths and Stereotypes In The News. (San Francisco, CA: We Interrupt This Message, 1997)

    Topics include how to detect bias in the news, how to communicate with journalists, how to write a letter to the editor, how to meet with news management, and how to organize a demonstration. A tip-sheet format makes it easy to photocopy individual pages for use in meetings, mailings, and other situations that urge media action.

  3. Fink, Paul Jay and Tasman, Alan, editors. Stigma and Mental Illness (Washington, D.C.: American Psychiatric Press, 1992)

    First-person accounts of stigma open this book. There are chapters on attitudes toward mental illness in ancient Greece, medieval and renaissance Europe, and 19th century United States. There are also chapters on the stigma of psychiatric hospitalization and how it affects people, on the attitudes of medical students, and on the stigmatization of psychiatrists.

  4. Philo, Greg, editor. Media and Mental Distress. The Glasgow University Media Group (New York: Addison Wesley Longman, Inc., 1996)

    This book is a product of research conducted by the Glasgow University Media Group on the media and mental health/mental illness in Britain. Its central theme is the routine stigmatization of mental illness by the media and how these images affect the public, caregivers, and mental health survivors.

  5. Shapiro, Joseph P. No Pity: People With Disabilities Forging A New Civil Rights Movement. (New York: Times Books/Random House, 1994)

    This book chronicles the birth of the independent living movement and its progress alongside the civil rights struggles of other minorities.

  6. Salzman, Jason. Making The News. A Guide For Nonprofits And Activists. (Boulder, CO: Westview Press, 1998)

    This handbook, based on interviews with activists and journalists, explains how to generate news coverage about any worthy cause or issue. It tells how to plan media events, write press releases, contact reporters, deliver sound bites, lobby editorial writers, and more.

  7. Wallack, Lawrence. News for a Change: An Advocate's Guide to Working With the Media. (Thousand Oaks, CA; Sage Publications, 1999)

    This book is a comprehensive instruction manual for grassroots activists working for social change. Step-by-step techniques for presenting health issues to the media are illustrated by concrete examples.

  8. Wallack, Lawrence et.al. Media Advocacy and Public Health. Power for Prevention. (Newbury, CA: Sage Publications, 1993)

    This book examines the role of the media in framing public health debates. The chapters that lay out the theoretical underpinnings of mass communication as a tool for change are of interest to serious students of public health and safety.

  9. Wahl, Otto F. Media Madness: Public Images of Mental Illness. (New Brunswick, NJ: Rutgers University Press, 1995)

    This book about media images of psychiatric conditions draws its examples from entertainment, advertising, and the news. Dr. Wahl’s analysis of the stereotypes is also a plea for change.

  10. Wahl, Otto F. Telling Is Risky Business: Mental Health Consumers Confront Stigma. (New Brunswick, NJ: Rutgers University Press, 1999)

    The experience of stigma and discrimination is told in the words of mental health consumers in Dr. Wahl’s second book. Information about coping strategies, resources, and what mental health consumers would like the public to understand about their vulnerabilities are highlights of this unique book.

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Updated 7/03

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