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Blueprint for Change: Ending Chronic
Homelessness for Persons with Serious
Mental Illnesses and Co-Occurring Substance Use Disorders
Chapter 4: Establish a Comprehensive, Integrated System of Care
People with serious mental illnesses and/or co-occurring substance use
disorders who are homeless need multiple services, including housing, health
care, mental health services, substance abuse treatment, income supports and
entitlements, life skills training, education, and employment. These
services typically are provided by multiple agencies in different systems,
leaving individuals to coordinate their own care. They may receive duplicate
services at multiple agencies or no services at all. This chapter examines
both the need for a comprehensive, integrated service system, and the steps
and strategies to achieve systems change.
Why Comprehensive, Integrated Services?
The concept of integrating human services to improve outcomes for
individuals with multiple and complex needs is not new. For more than 30
years, active efforts to integrate human service systems have been called by
such names as community integration, comprehensive services, community
support systems, and a Continuum of Care (Dennis et al., 1999). In its 1992
report, Outcasts on Main Street, the Federal Task Force on
Homelessness and Severe Mental Illness set as a goal for the Nation, "an
integrated service system for homeless people with severe mental illness."
Clearly, progress has been made, but much remains to be done.
Systems integration efforts have taken on special urgency in an era of
increasing needs and limited resources. Contemporary systems integration efforts
are driven by several important factors. The relaxation of some Federal program
regulations—through block grants and special waivers, for example—creates
opportunities to promote integrated services. In addition, some Federal/state
programs, including Medicaid managed care and welfare reform, may prompt
collaboration among diverse agencies in order to meet mandated financial
objectives and client outcomes (NASMHPD and CMHS, 1999).
The Definition of Systems Integration
At its most basic, systems integration is designed to change service delivery
for a defined population and involves fundamental changes in the way agencies
share information, resources, and clients (Dennis et al., 1999). In particular,
systems integration focuses on reducing barriers, coordinating and improving
existing services, and developing new programs to improve the availability,
quality, and comprehensiveness of services (Miller, 1996).
Systems integration efforts require the creation of formal relationships
among agencies within and across systems. Systems integration cannot succeed
without an emphasis on integrated services, as well (Agranoff, 1991; Cocozza et
al., 2000).
The Creation of a Seamless System of Care
The ultimate goal of systems integration is to improve outcomes for people
with serious mental illnesses or co-occurring disorders who are homeless. To do
so requires creating a system of care that is seamless to the individuals being
served. Indeed, full integration assumes a system-wide policy that makes "any
door the right door" to receive needed treatment and services. This means that
people with serious mental illnesses or co-occurring disorders who are homeless
must be able to enter the service system through any service door, be assessed,
and have access to the full range of comprehensive services and supports they
want and need (Federal Task Force on Homelessness and Severe Mental Illness,
1992).
This approach challenges the ways in which systems with different funding
streams, philosophies, and missions typically offer services. However, by
responding collaboratively to address the multiple needs of people who are
homeless, service systems benefit from a more efficient use of limited
resources. Individuals benefit from client-centered services that place the
burden of coordination on the systems that are serving them (NTAC, 2000).
Barriers to Integrating Services
Despite distinct advantages to both systems and clients, the barriers to
integrating service systems are both broad and deep. As one observer notes,
"While everybody is in favor of coordination, nobody wants to be coordinated."
(Feldman, 1976).
Some specific system-level barriers to effective integration include:
- Well-established programs and a specialized work force;
- Interagency turf battles;
- Funding limitations;
- Lack of technology and resources to support information needs;
- Lack of available services;
- Size and complexity of the service system;
- Lack of political will and mechanisms to channel public support; and
- Legislative and political opposition.
(NASMHPD and CMHS, 1999; Yessian, 1995; Rochefort and Dill,
1994; Agranoff, 1991; Feldman, 1976)
The tools to address these barriers include the key strategies and mechanisms
for systems integration highlighted below. Sometimes Federal or state
regulatory, statutory, or budgetary requirements must be relaxed to make it
easier for agencies to collaborate with one another. However, even small changes
in the way agencies relate to one another can pave the way for greater
cooperation on behalf of people with serious mental illnesses or co-occurring
disorders who are homeless.
Key Systems Integration Strategies and Mechanisms
Successful systems integration is based on all the knowledge a community has
at its disposal about the population to be served. In particular, research and
experience have demonstrated that services for people with serious mental
illnesses or co-occurring disorders who are homeless should be recovery-focused,
culturally competent, flexible and individualized, and client-centered. Further,
the full array of services that individuals need must be in place or must be
created. This makes it essential that individuals with mental illnesses and
substance use disorders who are homeless have access to all mainstream benefits
and services for which they are eligible.
For instance, the importance of making a variety of safe, affordable housing
options available cannot be overstated. Without housing, services and supports
cannot be effective. Finally, individuals must be supported while making
transitions among services (e.g., from transitional to permanent housing) or
from an institution to the community.
Each of the specific steps outlined is critical to making systems change a
reality. The strategies required to carry out each step will vary depending on
the local needs, resources, and community priorities; however, strategies that
have proven successful in other jurisdictions offer useful guidance (Foster et
al., 1998; Hoge and Howenstine, 1997; Ridgely et al., 1998).
Develop the Infrastructure for Systems Change
Choose a Change Agent
A dedicated staff person brings energy and attention to the task of systems
integration. This person should be capable of providing the leadership necessary
to engage key stakeholders from all service sectors. Key leadership
characteristics for such a person include "vision, entrepreneurship, political
astuteness, a respect for diversity, and a talent for managing complexity." (Yessian,
1995). The systems integration coordinator must be highly respected and
independent of the key collaborators to avoid the impression of favoritism or an
imbalance of power.
Secure Adequate Resources
Money is a necessary, though not sufficient, ingredient of systems
integration. Without flexible funding or regulatory relief, systems integrators
begin in a weak position (Yessian, 1995). The next chapter includes an overview
of strategies to support services for people with serious mental illnesses
and/or co-occurring substance use disorders who are homeless.
Build a Coalition of Key Stakeholders
Building a coalition of key stakeholders is critical to the systems change
process. This group must include individuals with the authority to commit their
organizations and their resources to needed changes (Agranoff, 1991). Such
groups may vary in size and composition, organizational structure and process,
and missions and objectives (Cocozza et al., 2000). In general, however,
coalition membership should be inclusive rather than exclusive and should
involve consumers and recovering persons in an active role (Kaye and Wolfe,
1995). Other important stakeholders might include:
- Executive branch leaders from state and local governments (e.g., governors,
mayors);
- Agency heads from state and local departments of housing, mental health,
substance use, health, Medicaid, welfare/social services, education, homeless
services, transportation, labor, criminal justice, etc.;
- Health, mental health, substance abuse treatment, and homeless assistance
providers;
- Faith and community-based organizations;
- People who are homeless or formerly homeless;
- Consumers and recovering persons and their families;
- Members of the business community; and
- Advocacy groups.
HHS has sponsored a series of state-level Policy Academies designed to
develop the infrastructure for systems change. The Academies create or reinforce
relationships among key stakeholders in selected states (e.g., the governor’s
office, state legislators, key program administrators, and stakeholders from the
public and private sectors) who can work together to improve access to
mainstream services for people who are homeless.
Nurture the Coalition and Continue to Form Partnerships
Relationships with key stakeholders must be nurtured to engage them fully in
the process. Other important parties may be identified along the way and should
be similarly engaged (NTAC, 2000). Once a coalition is established, members can
begin to build relationships and develop a common language, define their
mission, and create a structure for working together (Kaye and Wolff, 1995).
Building a coalition is a means to systems change but is not an end product.
Collaborative planning is an ongoing process that involves building new
relationships and securing commitment from all players to carry out a
community’s plan to address homelessness. When forming new or re-evaluating old
relationships, individuals must be aware of preconceived notions about the
services and resources of other stakeholders and be open to understanding new or
different perspectives. Engaging in active listening and focusing on ideas
rather than people support honest expression of ideas and information sharing (HHS,
HUD, and Interagency Council on the Homeless, 1999).
Engage in Strategic Planning
Developing a formal plan for action is a critical ingredient of the
collaborative planning process (HHS, HUD, and Interagency Council on the
Homeless, 1999; and HomeBase, 1999; HHS, undated). This is best accomplished by
strategic planning, summarized in Table 4.1. Engaging in this process helps both
delineate the parameters of the systems integration effort and set specific
goals and objectives. Without such a plan, systems integration efforts have no
direction, no means to evaluate their progress, and no basis on which to build
trust (Dennis et al., 1999).
Define the Issue
Before a community can develop a plan to integrate care for people who are
homeless, it must be clear about the services it currently offers and the
existing gaps or unmet needs. Data that indicate where people are not being
served or are underserved in the system, along with anecdotal examples that
point to barriers or gaps in the system, should be discussed openly to help the
group produce a shared definition of the problem (NTAC, 2000).
Such data may include "hard" data such as admissions and clinical encounter
information from programs that serve people with serious mental illnesses or
co-occurring disorders and people who are homeless. "Soft" information from key
informant interviews and focus groups with system stakeholders also may be
considered (NTAC, 2000).
Table 4.1. The Strategic Planning Process
| Steps |
Activities |
| 1. Define the Issue |
Identify existing services and resources, and
gaps or unmet needs in the system. Share and discuss data to reach
agreement on the definition of the problem or issue.
|
| 2. Create a Shared Vision |
Use imagination and brainstorming to create a
"preferred future."
Don’t be constrained by current resources.
|
| 3. Develop a Plan |
Identify goals/objectives and strategies to
achieve them. Assign responsibility for tasks to implement each strategy.
Establish timeframes for completion.
|
| 4. Implement the Plan |
Carry out selected strategies/mechanisms, as
assigned.
|
| 5. Monitor Progress |
Collect outcome data and monitor progress. Allow for ongoing input and refinement of strategies, as necessary.
|
Create a Shared Vision
When the group has identified the problem or problems it wants to address
(e.g., lack of discharge planning for individuals with serious mental illnesses
or co-occurring disorders leaving a hospital or jail), members can develop a
shared vision or mission statement to create an integrated service system
(National GAINS Center, 1999). When creating this vision, the group should not
be constrained by the system’s current configuration or resources. Rather, the
vision should represent the "preferred future," or what the system could look
like if integration were achieved (NTAC, 1999). Ultimately, a vision statement
should be simple, concise, and clear, and should immediately engage all parties
(NTAC, 2000).
Develop a Plan
When the group has defined its mission, it should develop a formal plan that
specifies recommendations for change. Such a plan documents the specific goals,
objectives, and strategies to make the vision a reality. For example, the group
may decide that it needs to implement formal discharge planning policies to keep
people with serious mental illnesses or co-occurring disorders from becoming
homeless when they leave a jail, a detoxification program, or a psychiatric
hospital. The plan also should assign responsibilities for tasks and set
timeframes for completion (Kaye and Wolff, 1995). Procedures to measure outcomes
to ensure accountability should be built in, as well.
Implement the Plan
A number of mechanisms may be used to achieve a community’s specific goals,
as highlighted in Table 4.2. These include co-location of services, pooled or
joint funding, and streamlined application procedures. For example, a homeless
services provider may station a case manager at the jail to help create
discharge plans for people with serious mental illnesses and/or co-occurring
substance use disorders who are at risk of homelessness.
Many of these strategies have been successful in promoting systems
integration in other communities, including those involved in the ACCESS (Access
to Community Care and Effective Services and Supports) demonstration program,
administered by SAMHSA’s Center for Mental Health Services. Findings from the
ACCESS program evaluation indicate that successful implementation depends, in
part, on the specific strategies selected. Certain mechanisms, such as the use
of interagency agreements, appear to be easier to implement. Others, including
the development of interagency management information systems or the
establishment of common eligibility criteria, require time and a
well-functioning infrastructure to implement successfully (Cocozza et al.,
2000).
Monitor Progress
Incremental improvements as well as long-term accomplishments can be
highlighted by collecting and analyzing data (NTAC, 2000). For example, a
community might measure the number of days homeless after leaving jail as an
indicator of successful discharge planning efforts for people with serious
mental illnesses or co-occurring disorders at-risk of homelessness. This
information also can be used to make mid-course corrections in the
implementation plan, as necessary.
Successful evaluation efforts require the establishment of guidelines for
consistent data collection, performance standards, and reporting. Quality
assurance can be linked to funding (e.g., written into contracts) as a means of
ensuring compliance and promoting effective practices. Strategies for evaluating
outcomes are described further in Chapter 7.
Seek Technical Assistance
The value of technical assistance at critical junctures is an important
strategy in a successful systems change initiative. Communities sometimes need
an outside facilitator to help with the strategic planning process or an
evidence-based practice expert who can advise on implementing a specific service
component (Pitcoff, 1997; Dennis et al., 1999). It also may be helpful to visit
and talk with others who have already implemented a similar approach or system
component in another community. Being able to identify specific technical
assistance needs and to seek help early in the process can help communities
avoid losing the momentum needed to achieve lasting change.
Table 4.2. Implementation Strategies
| Co-locate services—Provide multiple services in a single location for "one-stop shopping" for users. |
| Train and cross-train staff—Train own staff or staff from other agencies about a particular topic or agency’s services. |
| Create interagency agreements or memoranda of understanding—Enact agreements among agencies, either formal or informal, that specify
arrangements to share information and referrals or coordinate services. |
| Implement interagency management information systems (MIS)—Develop MIS and computerized client tracking systems that link agencies, promote
information sharing, simplify referrals, and facilitate clients’ access to
services. |
| Use pooled or joint funding—Try aggregating or combining funds to create new services or resources to support interagency activities. |
| Develop uniform applications, eligibility criteria, and intake assessments—Create a standard process or form used by multiple
agencies that an individual completes only once. |
Use interagency service delivery teams—Establish interdisciplinary teams from different agencies that address the multiple needs of clients in an integrated manner. |
| Make some flexible funding available—Use noncategorical funding to fill gaps in services, purchase expertise, or leverage additional resources. |
| Consider special waivers—Apply for or implement waivers in regulatory, statutory, or budgetary requirements that reduce barriers and
promote access to services. |
| Consolidate programs or agenciesCombine multiple agencies or programs under a central administrative structure to reduce fragmented
services. |
Participate in Community-Wide Planning Efforts
Systems change can’t happen in a vacuum. A number of local and statewide
planning processes can bring key stakeholders to come together and create a plan
for services. The needs of people with serious mental illnesses and/or
co-occurring substance use disorders who are homeless must be represented in
these plans. In addition, these groups may have valuable data and ideas to
share, and their members may include some of the key players you need on your
team.
For example, the Continuum of Care process is more than an application
for HUD Homeless Assistance funds. According to HUD, a Continuum of Care plan is
"a community plan to organize and deliver housing and services to meet the
specific needs of people who are homeless as they move to stable housing and
maximum self-sufficiency. It includes action steps to end homelessness and
prevent a return to homelessness." (HUD, 1999).
Mental health and substance abuse services providers must participate in
Continuum of Care planning to ensure that the needs of the individuals they
serve are represented in requests for homeless assistance funds. Likewise the
HUD Consolidated Plan, needed to access mainstream housing resources, is a
strategy for holistic community planning. State and community Consolidated Plans
are built on public participation. The volume, How to Be a "Player" in the
Continuum of Care: Tools for the Mental Health Community, is an excellent
resource in this regard (Technical Assistance Collaborative, 2000).
(Technical Assistance Collaborative, 2000).
Finally, in response to the Supreme Court’s 1999 decision in Olmstead
versus L.C., most states have created task forces or commissions to develop
plans to serve people with disabilities in less restrictive settings (GAO,
2000b). CMHS provides funds and technical assistance for statewide coalitions
that are addressing barriers to full community integration for adults and
children with mental illnesses. Because people with serious mental illnesses
and/or co-occurring substance use disorders leaving institutions are at risk for
homelessness, and those living precariously in the community are at risk for
unnecessary hospitalization, key stakeholders in the mental health services,
substance abuse treatment, and homeless service systems must be active players
in developing statewide Olmstead plans.
Ensuring Adequate Resources
Devising a formal plan and getting the commitment of top-level leaders and
key stakeholders are critical to any successful systems change effort. However,
while necessary, they are not sufficient alone to make change a reality.
Planning must be linked to adequate financial resources. Finding ways to
leverage resources, make better use of mainstream resources, and pursue new
sources of funding are essential. Improved coordination among existing funding
sources also is necessary. The next chapter describes strategies to support
housing and services for people with serious mental illnesses or co-occurring
disorders who are homeless.
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